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. 2019 Mar 28;16(7):1112. doi: 10.3390/ijerph16071112

Table 3.

Characteristics of the selected studies.

Sr. No Authors, Year Objective Study Population Sample Size Assessment Measure Study Design and Analyses Summary of Findings Study’s Definition of HL, Constructs or Domains/Theoretical Framework
1. (Porteous, Palmer, & Wilkinson, 2014) [76] To gather knowledge on eating behaviours, and nutrition-related needs during pregnancy and postnatally of women admitted to the postnatal ward. Women aged at least 18 years who were admitted to the postnatal maternity ward at a hospital N = 309 women -------------------- Study design: Cross-sectional study
Analysis:
SPSS, Descriptive statistics, Chi-square and independent samples t-tests
Many women reported an interest in nutrition and healthy weight management during pregnancy and in the postnatal period and rated its importance highly, and had poor diet quality, despite identifying healthy eating as a personal priority. 42% of the women self-reported gaining excess weight during pregnancy. One quarter reported knowing their gestational weight gain goals, yet only 1.6% was correct. Half reported interest in receiving nutrition education during pregnancy and post-delivery. Nutrition topics requested included healthy eating for development of baby pre- and post-delivery and maternal weight management. ----------------
2. (Adams, Appleton, Hill, Ruffin, & Wilson, 2009) [77] To measure the level of functional health literacy in adults with asthma from a representative population sample and explore associations with health status and morbidity. In a non-replacement sample, 1 adult age 15 years or older, having birthday in near future, was selected for interview in the home by trained health interviewers. N = 2824
Males = 1358
Females = 1466
Newest Vital Sign (a screening test developed specifically for use in primary care) Study design:
Data were obtained from the South Australian Health Omnibus Survey during spring 2008.
Analysis: SPSS, Bivariate associations with Chi-square tests, Multiple logistic regression models
Inadequate and at-risk functional health literacy is common and is associated with adverse asthma outcomes in a representative sample of adults with asthma. Increased symptoms, functional impairment, and significant health care use were more common in people with less health literacy in analyses adjusted for age, sex, and education --------------------
3. (Maguire et al., 2011) [78] The aim of this study was to explore health information sources accessed by people with schizophrenia and the level of trust invested in them. People with schizophrenia, general practice attendees N = 309
71 = adults with schizophrenia (recruited from both community and inpatient settings)
238 = general practice attendees.
---------------- Study design: Cross-sectional survey, questionnaire,
Analysis:
SPSS version 17, independent t-test, Chi-square test, Mann-Whitney U test and binary logistic regression, Correlation
There are significant differences in the reported utilization and trust of health information sources between people with schizophrenia and attendees at general practice settings. Those with schizophrenia are less likely to trust and obtain information from a doctor, and less likely to access the Internet ----------------
4. (Oh, Jorm, & Wright, 2009) [79] To compare young people’s preference for a website with self-help books and two face-to-face services—counselling and mental health services.
To explore factors associated with believing in the perceived helpfulness of each intervention.
Young Australians aged 12–25 years N = 3746 ---------------- Study design:
Telephone survey
Analysis:
SPSS version 16.0; percentage frequencies, logistic regressions
Most young people are open to the idea of accessing mental health information online, especially for disorders that are often perceived as behavioural problems. These young people also believe in helpseeking in general and are more willing to associate with peers who have mental health problems. ----------------
5. (Eckert, Kutek, Dunn, Air, & Goldney, 2010) [80] To examine rural and urban differences in depression-related mental health literacy, experience of depression and help-seeking. South Australian rural and urban young men aged between 15 and 30 years, who participated in two South Australian (SA) cross-sectional population-based Health Omnibus surveys (SAHOS), conducted in the autumns of 1998 and 2008 3010 = year 1998
3034 = year 2008
Questionnaire devised by Jorm et al. which includes a vignette depicting a man (John) with classical features of depression. Study design:
Cross-sectional population-based survey
Analysis: SPSS, StataSE, Pearson’s Chi-square tests, Fisher Exact test
Recognition of depression increased significantly in rural and urban young men between 1998 and 2008. More rural young men than urban men identified symptoms of depression in 1998 but that was not evident in 2008. Both groups were more likely to have a close friend experience symptoms of depression and to use antidepressant medications in 2008 compared with 1998. Rural young men experienced a significant increase in recognition of personal depressive symptoms and levels of confidence in psychiatrists and psychologists in 2008 compared with 1998. Both rural and urban young men were significantly less likely to rate dealing with problems on their own as helpful in 2008 as in 1998. ----------------
6. (Crawford et al., 2015) [81] To determine the efficacy of the Mental Health First Aid (MHFA) training for university nursing students Undergraduate nursing students at a large university located in Perth, Western Australia N = 126
63 = intervention group
63 = control group
---------------- Study design:
Experimental, Randomised Controlled Trial
Analysis:
SPSS Version 22; independent samples t-test or Pearson’s Chi-square test, Repeated measures analysis of variance, Logistic regression
Given the known burden of mental health disorders among student populations, it is important universities consider effective strategies to address mental health issues. Providing Mental Health First Aid (MHFA) training to students offers the advantage of increasing mental health literacy, among the student population. Further, students trained in MHFA are likely to utilise these skills in the broader community, when they graduate to the workforce. It is anticipated that this trial will demonstrate the scalability of MHFA in the university environment for pre-service nurses and that implementation of MHFA courses, with comprehensive evaluation, could yield positive improvements in the mental health literacy amongst this target group as well as other tertiary student groups Mental health literacy incorporates several components: “(a) the ability to recognise specific disorders or different types of psychological distress; (b) knowledge and beliefs about risk factors and causes; (c) knowledge and beliefs about self-help interventions; (d) knowledge and beliefs about professional help available; (e) attitudes which facilitate recognition and appropriate help-seeking; and (f) knowledge of how to seek mental health information” (Jorm, 2000) [82].
7. (Smith, Petrak, Dhillon, Taylor, & Milross, 2014) [83] This study aimed to (1) explore radiation oncologists’ understandings and awareness of health literacy among patients with a reasonable command of English; (2) gain insight into oncologists’ views regarding health literacy; and (3) identify techniques oncologists employ to communicate to different literacy populations. Radiation oncologists N = 26 radiation oncologists.
19 = male
7 = female
---------------- Study design:
Qualitative, Semi-structured interviews
Analysis:
Framework method
Four key themes were identified: (1) identifying a patient’s literacy level; (2) perceived impact of literacy; (3) challenges and strategies to communicating concepts and supporting decision-making; and (4) suggested improvements to the health system. Participants described subjectively assessing a person’s literacy level by monitoring the types of questions asked; analysing the language used; examining non-verbal behaviour, and considering a person’s socio-economic situation. Participants reported the challenges of discussing the subtleties of cancer treatments with lower literacy groups such as the benefits and risks of treatment options and clinical trials, and tended to provide the basic facts to facilitate understanding. Health literacy represents ‘the cognitive and social skills which determine the motivation and ability of individuals to gain access to, understand and use information in ways which promote and maintain good health’ (Nutbeam 2000) [84].
Radiation oncologists acknowledged the importance of health literacy in oncology, and employed a number of techniques to tailor their communication to different literacy populations.
8. (Rees, Austen, Anderson, & Egan, 2014) [85] This study investigated the impact of providing corrective information about the nature of intrusive thoughts on their subsequent appraisal in a community sample. Community participants N = 148 community participants Obsessive Compulsive Inventory-Revised, Intrusions Inventory Study design:
Experimental design
Analysis:
Descriptive statistics and mean comparisons, Correlation analysis, Repeated measures ANOVA
The results of this study support the efficacy of provision of brief written information in reducing negative appraisals of intrusive thoughts in a community sample. It suggests a possible role for education about intrusive thoughts as a prevention strategy for obsessive-compulsive disorder. Mental health literacy is a term used to describe an individual’s understanding of various aspects of mental illness. This can include knowledge about early warning signs for common psychological disorders, or understanding treatment options.
9. (Isaacs, Maybery, & Gruis, 2013) [86] To explore the help-seeking behaviour of Aboriginal men who are mentally unwell in a rural Victorian community. Aboriginal people in Australia including men, carers and those involved in service delivery. N = 17 Aboriginal people
15 = male
---------------- Study design: Qualitative design, semi-structured interviews
Analysis: Thematic analysis
The findings suggest that there is a need for programmes that aim to improve mental health literacy and promote help seeking among Aboriginal men who are mentally unwell. Such programmes need to be developed jointly by mental health services as well as Aboriginal stakeholders, and implemented in a culturally sensitive and acceptable way. ----------------
10. (Jamieson, Parker, & Richards, 2008) [87] To investigate the social, cultural and environmental context of oral health among a group of Indigenous Australians in South Australia’s mid-north region. Participants were Indigenous and had lived in South Australia’s mid-north region for most of their lives N = 34
4 = focus group discussions
30 = females 4 = males
---------------- Study design: Qualitative design, Focus group discussions
Analysis: Nud*st QSR N6 software, Thematic analysis
Five sub-categories were identified; ‘lifestyle changes’, ‘oral health behaviours’, ‘barriers to dental care’, ‘impact of poor oral health’ and ‘oral health literacy’. Participants felt that historical legacy impacted on the oral health of community members, through continued practices of being told what to do, where to live and what oral health services were available to them. Participants perceived they had little power over their oral health or oral health care decisions. ----------------
11. (Hosking, Buchbinder, Pasco, Williams, & Brennan-Olsen, 2016) [88] To add that health literacy is likely to play a major role in the ability of patients to access, understand, and apply information in order to make informed decisions about osteoporosis treatment. Osteoporosis patients Health Literacy Questionnaire (HLQ) (to assess individual’s health literacy needs) Letter to the editor The comprehension of health literacy needs of a person by applying most recent tools of health literacy in order to develop understanding regarding obstacles in medication. This strategy would ensure addressing problems of patients in person-centered way, improved adherence to medication and attaining outcomes of patients. ----------------
12. (White et al., 2013) [89] To assess the impact of a brief intervention (BI) designed to improve HCV vaccine CTL among people who inject drugs in Sydney, Australia. People who inject drugs N = 102
74 = male
28 = female
---------------- Study design:
Experimental, Community-based prospective observational study
Analysis:
STATA 12.0; Means, medians, interquartile ranges, paired samples t-test, Multiple logistic regression
A significant increase in hepatitis C virus (HCV) vaccine clinical trial literacy (CTL) was observed, suggesting that new and relatively novel concepts can be learned and recalled in this group. These findings support the feasibility of future trials among this population. ----------------
13. (Briggs et al., 2011) [90] To measure broad elements of health literacy among individuals with chronic low back pain (CLBP) and without low back pain (LBP) using the Health Literacy Measurement Scale (HeLMS). adults who reported either CLBP for 3 months or more, or no history of LBP within the last 12 months N = 80
36 = Community-dwelling adults with chronic low back pain
44 = Community-dwelling adults wit with no history of low back pain
Nordic Musculoskeletal Pain Questionnaire, Nordic Musculoskeletal, Oswestry Disability Index, Avoidance Beliefs Questionnaire, Back Pain Beliefs Questionnaire, Coping Skills Questionnaire, Functional health Literacy (s-TOFHLA).
Health Literacy Measurement Scale (HeLMS) (to measure an individual’s ability to seek, understand or utilise health information)
Study design: Community-based cohort study in Perth, Western Australia, from November 2008 to examine familial associations in LBP.
Analyses: SPSS Statistics 17.0; independent t-tests Chi-square tests, Mann-Whitney tests
Although no differences were identified in HeLMS scores between the groups for seven of the health literacy domains, adults with CLBP reported greater difficulty in engaging in general positive health behaviours. This aspect of health literacy suggests that self-management support initiatives may benefit individuals with CLBP. Health literacy—the ability to seek, understand and utilise health information
14. (Smith et al., 2010) [91] To determine whether a decision aid designed for adults with low education and literacy can support informed choice and involvement in decisions about screening for bowel cancer. Adults aged between 55 and 64 with low educational attainment, eligible for bowel cancer screening. N = 572 adults ---------------- Study design: Experimental, Randomized controlled trial
Analysis:
SPSS, paired sample t-test and Wilcoxon signed rank test, Mann-Whitney test, Chi-square test, Mantel-
Haenszel test
Tailored decision support information can be effective in supporting informed choices and greater involvement in decisions about faecal occult blood testing among adults with low levels of education, without increasing anxiety or worry about developing bowel cancer. Using a decision aid to make an informed choice may, however, lead to lower uptake of screening. ----------------
15. (Saunders & Peerson, 2010) [92] To the editor To the editor ---------------- Letter to the editor Australian health initiatives aimed at reducing the burden of chronic and preventable disease should consider the role and challenges of health literacy beyond its application to health services use. The growing understanding of the complex behavioural, social, systemic, and ecological forces that influence health and wellbeing should help guide these efforts. ----------------
16. (Jennings, Spurling, & Askew, 2014) [93] To identify barriers and enablers to undertaking health checks in an urban Aboriginal Medical Service. Clinical staff (doctors, nurses and Aboriginal and Torres Strait Islander health workers, AHWs) N = 25 clinical staff (doctors, nurses and Aboriginal and Torres Strait Islander health workers).
10 = AHWs
8 = nurses
7 = doctors
---------------- Study design: Qualitative research design; Semi-structured Interviews
Analysis: NVivo 9 software, content analysis
Data analysis revealed that successful completion of HCs was contingent upon several interconnected components, including the client attending the Aboriginal Medical Service (Shamsuddin et al.) and consenting to the Health Check (HC), and staff initiating and completing it. Barriers and potential enablers were indentified at each of these stages, in addition to overarching systems within the clinics. ----------------
17. (Gratwick-Sarll & Bentley, 2014) [94] To improve eating disorders mental health literacy. undergraduate Australian National University third year psychology students N = 177 undergraduate students.
141 = female
35 = male
1 = other
First Aid Experiences Questionnaire, First Aid Knowledge Test, Social Distance Scale, Mental Health Literacy Questionnaire for Bulimic Type Eating Disorders (to assess health literacy related with eating disorders) Study design: Repeated measures, uncontrolled, preliminary evaluation of a single 3-hour workshop
Analysis: Paired samples two-tailed t-tests, repeated measures analyses of variance (ANOVAs), McNemar’s test, Cochran’s Q
Following participation in the workshop, significant increases in eating disorder recognition and knowledge, and significant decreases in stigmatizing attitudes, were reported by participants. Moreover, 85% of participants reported that they provided assistance to someone whom they suspected had a mental health condition, including an eating disorder, during the 3-month follow-up period. Mental health literacy: the knowledge and beliefs that individuals hold, which lead to improved recognition, management, and prevention of their own or another’s mental disorder (Jorm, Korten, Jacomb, Christensen, Rodgers, & Pollitt, 1997)
18. (Caposecco, Hickson, Meyer, & Khan, 2016) [95] This study investigated if a hearing aid user guide modified using best practice principles for health literacy resulted in superior ability to perform hearing aid management tasks, compared with the user guide in the original form. Participants having ages 55 years or older, living in the community, comfortable speaking and reading English, and have no experience using or managing hearing aids (HAs). N = 89 adults ages 55 years and over.
47 = Modified guide
42 = The original guide
Demographic Questionnaire, The Measure of Audiologic Rehabilitation Self-Efficacy for Hearing Aids, The Hearing Aid Management test, The Short test of Functional Health Literacy in Adults (Timed reading comprehension test that consists of two prose passages containing actual materials that an adult might encounter in a healthcare setting e.g., instructions for a gastrointestinal procedure), Montreal Cognitive Assessment, Grooved Pegboard Test, Pure-Tone Audiogram Study design: Experimental, Two-arm study design.
Analysis: Stata software, independent samples t test, Chi-square test, Mann–Whitney U test, and the Fisher’s exact test, multivariable linear regression model, multivariable linear regression model
Findings indicate that the need to design hearing aid user guides in line with best practice principles of health literacy as a means of facilitating improved hearing aid management in older adults. Health literacy refers to “the degree to which individuals have the capacity to obtain, process, and understand basic health information and services needed to make appropriate health decisions” (Ratzan & Parker 2000, p. 3).
19. (Cashin, Heartfield, Cox, Dunn, & Stasa, 2015) [96] This paper presents analysis of consumer focus groups that were undertaken as a part of the project to develop the now current Nursing and Midwifery Board of Australia’s Nurse Practitioner Standards for Practice. Consumer. The age of the consumers varied from people in their early 20s to people who were over 60 years of age. N = 6 focus groups (32 consumers) ---------------- Study design: Qualitative, focus groups
Analysis:
Interpretive analysis
Consumers’ knowledge of nurses’ roles in the Australian primary healthcare system, and hence system literacy (particularly in terms of navigating the system), was low. Of perhaps greatest importance is the fact that those consumers with low health systems literacy also exhibited a low level of motivation to seek new knowledge. Many consumers relied on the medical profession to direct care. Health literacy relates not only to individual literacy skills, but also to knowledge of the healthcare context or system Australian Commission on Safety and Quality in Healthcare (ACSQHC 2013).
20. (Davies, Bukulatjpi, Sharma, Davis, & Johnston, 2014) [97] To explore the knowledge, perceptions and experiences of remote dwelling Indigenous adults and their health care providers relating to hepatitis B infection with a view to using this as the evidence base to develop a culturally appropriate educational tool. Health clinic staff, community health educators, liver clinic staff—both urban and remote, —and doctors and nurses, Indigenous and non-Indigenous, Indigenous people living with chronic hepatitis B (CHB) and Indigenous community members. 12 = patients with hepatitis B
9 = community members
13 = key informants
25 = were Indigenous individuals
---------------- Study design: Participatory action research project design, Semi-structured interviews
Analysis: Deductive and inductive thematic analysis
Low levels of biomedical knowledge about Hepatitis B, negative perceptions of Hepatitis B, communication (particularly language) and culture were the major themes that emerged from the data. Accurate concepts grounded in Indigenous culture such as “only your blood can tell the story” were present but accompanied by a feeling of disempowerment due to perceived lack of “medical” understanding, and informed partnerships between caregiver and patient. Culturally appropriate discussions in a patient’s first language using visual aids were identified as vital to improving communication. Paasche-Orlow & Wolf’s model of the pathways linking health literacy and health outcomes (Paasche-Orlow, & Wolf, 2007)
21. (Yuen et al., 2016) [98] To develop a conceptual model that describes the elements of cancer caregiver health literacy. Caregivers, people with cancer and healthcare providers/policymakers. N = 6 concept mapping workshops were conducted
13 = caregivers
13 = people with cancer
11 = healthcare providers/policymakers
---------------- Study design:
Mixed methods approach; Concept mapping
Six major themes and 17 subthemes were identified from 279 statements generated by participants during concept mapping workshops. Major themes included: access to information, understanding of information, relationship with healthcare providers, relationship with the care recipient, managing challenges of caregiving and support systems. The study extends conceptualisations of health literacy by identifying factors specific to caregiving within the cancer context. The findings demonstrate that caregiver health literacy is multidimensional, includes a broad range of individual and interpersonal elements, and is influenced by broader healthcare system and community factors. Health literacy can be understood as a range of ‘personal characteristics and social resources needed for individuals and communities to access, understand, appraise and use information and services to make decisions about health, or that have implications for health. Health literacy includes the capacity to communicate, assert and enact these decisions’ (Yuen et al. 2014) [98].
22. (Nasuuna, Santoro, Kremer, & de Silva, 2016) [99] To examine the relationship between health conditions, specialist health service utilisation and academic performance in Australian children. Victorian children N = 24,678 children
12,660 = men
11,982 = women
School Entrant Health Questionnaire (survey tool with parent report on children’s health) Study design:
Prospective quasi-longitudinal study
Analysis:
Univariable and multivariable linear regression, Linear and logistic regressions
Some health conditions put children at risk of poorer academic performance, and interventions to prevent this such as appropriate support services in schools should be considered. ----------------
23. (Whittaker, Hodge, Mares, & Rodney, 2015) [100] To identify the minimum health information system (Akoijam, Jamir, Phesao, & Senjam) competencies that could be expected in low- and middle-income countries (LMICs) that do not have advanced technology. Health workers N = 38 experts with broad-based HIS knowledge and extensive development experience
21 = male
17 = female
---------------- Delphi approach
Analysis: Qualtrics® software and content analysis.
Based on the initial competencies identified in the literature review and after two rounds of consultation with experts via a Delphi method, 68 HIS competencies (51 core and 17 ICT-specific) were identified in this consultation. The competencies focused on both the generation and use of data at all levels of the health system, highlighting the importance of embedding a culture of information use. This consultation is one of the first to identify the HIS competencies required among general health workers, as opposed to specialist HIS roles. It is also one of the first attempts to develop a framework on minimum HIS competencies needed in LMICs, highlighting the skills needed at each level of the system, and identifying potential gaps in current training to allow a more systematic approach to HIS capacity-building. ----------------
24. (May, Rapee, Coello, Momartin, & Aroche, 2014) [101] To investigate differences in mental health knowledge and beliefs between participants from the Iraqi and Sudanese refugee communities, and Australian born individuals, in Sydney, Australia. Adults (18 years and over); Iraqi nationals, Sudanese nationals, and Australians. N = 97
32 = Iraqi nationals
32 = Sudanese nationals
33 = Australians.
---------------- Study design:
Mixed-method, semi-structured interview, Chi-square test, one-way ANOVA
Analysis:
SPSS, Thematic analysis
Although sampling was non-random, suggesting caution in the interpretation of results, it appears that the mental health literacy of lay Australians may be more aligned with the western medical model of mental disorder than that of Iraqi and Sudanese refugee communities. Mental health literacy support needs of Iraqi and Sudanese refugee communities resettled in western countries such as Australia might include education about specific symptoms and causes of mental disorder and the effectiveness of psychiatric treatments. Mental health literacy refers to the knowledge and beliefs about mental disorders which aid their recognition, management, and prevention (Jorm, 2000) [82].
25. (Simpson et al., 2015) [102] To evaluate the sexual health literacy among students at the University of Tasmania. University student populations N = 1786 University of Missouri Sexual Health Survey (having three domains i.e. knowledge, sexually transmissible infection and pregnancy), ARCSHS Secondary Students and Sexual Health Survey having two domains (i.e. knowledge and HIV/Hepatitis) Study design:
Cross-sectional study
Analysis: STATA/SE 12.0 for Windows (StataCorp, College Station, TX, USA); Linear regression
This study, one of the first among university students in Australia, found a varied SHL by sex, age, sexual education and sexual experience, as well as by birthplace and religious affiliation. These findings have applications in orientation and education programs at Australian universities. Sexual health literacy (SHL) is the knowledge and familiarity with healthy practices as regards sexual health, and risk reduction strategies to engage in sexual activity safely and minimise negative consequences
26. (Yiu, & Bajorek, 2018) [103] To (1) characterise older patients taking warfarin, (2) assess these patients’ level of warfarin knowledge, and (3) describe their strengths and limitations in health literacy, and (4) explore relationships between participants’ characteristics, warfarin knowledge and health literacy. older patients (aged >65 years) taking warfarin in an Australian general practice setting N = 34 Purpose-designed questionnaire to record participants’ medical history, medication history, history of warfarin use, previous education received about warfarin
Customised brief Warfarin Knowledge Questionnaire
Health Literacy Questionnaire (HLQ
Descriptive, questionnaire-based pilot study, IBM SPSS version 23.0, Microsoft Excel. Descriptive statistics, non-parametric tests, e.g., chi-square test, Mann-Whitney U test, Spearman correlation test In this study warfarin knowledge gaps and a limitation of health literacy amongst a small sample of older patients were identified. The findings suggest that education and resources may need to be tailored to the needs of older patients taking warfarin and their carers to address these knowledge gaps and limitations in health literacy. Patients who may need greater support include those that need assistance in completing the HLQ, are overseas-born, or are taking 5 or more long-term medications. World Health Organisation (WHO) definition: the cognitive and social skills which determine the motivation and ability of individuals to gain access to, understand and use information in ways which promote and maintain good health [27]
27. (Stanton, Rebar, & Rosenbaum, 2018) [104] To examine the community’s mental health literacy, and views regarding exercise delivery for people with depression. People with depression N = 1265 Questionnaire devised by Jorm et al. [82] which includes a vignette depicting a man (John) with classical features of depression telephone-based 2017 National Social Survey, cross-sectional population survey, descriptive statistics, Chi-square tests for goodness of fit Australian adults demonstrate a high level of exercise and mental health literacy. The high level of support for accredited exercise physiologists is evidence of the effectiveness of health promotion campaigns from peak exercise professional agencies. -------------------