TABLE 3.

Parents’ and Clinicians’ Attitudes

	Parents’ Attitudes				Clinicians’ Attitudes
	N	Disagree, %	Neither Agree nor Disagree, %	Agree, %	N	Disagree, %	Neither Agree nor Disagree, %	Agree, %
Every newborn should receive
NBS	494	1	6	93	146	—	—	100
GS	494	10	57	33	146	42	50	8
Parental informed consent should be required for
NBS	493	22	21	57	147	54	15	31
GS	492	3	11	86	147	1	5	93
There are health benefits associated with
NBS	493	2	16	82	145	1	2	97
GS	494	2	27	71	147	5	44	51
There are risks associated with
NBS	490	50	31	19	144	48	13	39
GS	493	28	37	35	148	4	26	70
Concerned about the privacy of child’s genomic Informationa,b	493	17	18	65	145	4	13	83
Concerned child will be discriminated against on the basis of genomic informationc,d	490	22	25	53	147	8	20	72

Response options were on a scale ranging from strongly disagree (1) to strongly agree (5). Scores 1 and 2 were combined to create the disagree category. Scores 4 and 5 were combined to create the agree category. —, not applicable.

^aParent survey question: I am concerned about the privacy of my child’s genomic information.

^bClinician survey question: My patients’ parents should be concerned about the privacy of their child’s genomic information.

^cParent survey question: I am concerned that my child will be discriminated against on the basis of his or her genomic information.

^dClinician survey question: My patients’ parents should be concerned that their child will be discriminated against on the basis of his or her genomic information.