Table 1.
Baseline characteristics of patient and caregiver (N=159)
| Variable | n (%) |
|---|---|
| Patientb | |
| Mean age (s.d.), years | 53.3 (14.8) |
| range | 19–76 |
| Sex | |
| Female | 56 (35.2) |
| Male | 103 (64.8) |
| Race | |
| White | 125 (78.6) |
| Black or African-American | 2 (1.3) |
| Native Hawaiian or Other | |
| Pacific Islander | 2 (1.3) |
| More than one race | 5 (3.1) |
| Another group not listed | 6 (3.8) |
| Ethnicity | |
| Hispanic or Latino | 13 (8.2) |
| Non-Hispanic or Latino | 121 (76.1) |
| Annual income, $ | |
| < 25,000 | 45 (28.3) |
| 25,000–44,999 | 28 (17.6) |
| 45,000–64,999 | 19 (11.9) |
| > 65,000 | 30 (18.9) |
| Diagnosisa | |
| Leukemia | 97 (61.0) |
| Lymphoma | 21 (13.2) |
| MDS/MPS | 35 (22.0) |
| Other | 6 (3.8) |
| Mean Duration of Illness (s.d.), month | 19.9 (34.2) |
| range | 1.6–195.3 |
| Transplant conditioning intensity | |
| Myeloablative | 88 (55.3) |
| Non-myeloablative | 17 (10.7) |
| Reduce intensity | 40 (25.2) |
| Donor Source | |
| Matched Related Donor | 48 (30.2) |
| Matched Unrelated Donor | 57 (35.8) |
| Mismatched Unrelated Donor | 8 (5.0) |
| Cord | 39 (24.5) |
| Other | 5 (3.1) |
| Caregiverc | |
| Mean age (s.d.), years | 54.1 (13.7) |
| range | 18–82 |
| Sex | |
| Female | 125 (78.6) |
| Male | 31 (19.5) |
| Race | |
| White | 130 (81.8) |
| American Indian or Alaska Native | 1 (0.6) |
| Black or African-American | 2 (1.3) |
| More than one race | 6 (3.8) |
| Another group not listed | 6 (3.8) |
| Ethnicity | |
| Hispanic or Latino | 14 (8.8) |
| Non-Hispanic or Latino | 129 (81.1) |
| Education | |
| College graduate or above | 116 (73.0) |
| Annual income (reported by patient), $ | |
| < 25,000 | 50 (31.4) |
| 25,000–44,999 | 27 (17.0) |
| 45,000–64,999 | 31 (19.5) |
| > 65,000 | 29 (18.2) |
| Relationship | |
| Spouse/partner | 102 (64.2) |
| Parent | 20 (12.6) |
| Other | 29 (18.2) |
| Employment Status | |
| (Before caregiving) | n (%) |
| Full-time | 65 (40.9) |
| Part-time | 27 (17.0) |
| Unemployed | 16 (10.1) |
| On leave | 2 (1.3) |
| Retired | 40 (25.2) |
a
Abbreviations: MDS, myelodysplastic syndrome; MPS, myeloproliferative syndrome.
b
Patient information was not available for the following variables: race (n=19), ethnicity (n=25), annual income (n=37), duration of illness (n=17), transplant conditioning intensity (n=14), and donor source (n=2).
c
Caregiver information was not available for the following variables: age (n=3), sex (n=3), race (n=14), ethnicity (n=16), education (n=8), annual income (n=22), relationship (n=8), employment status before caregiving (n=9) and after caregiving (n=11).