. Author manuscript; available in PMC: 2019 Apr 27.

Published in final edited form as: J Perinatol. 2018 May 8;38(7):857–864. doi: 10.1038/s41372-018-0117-8

Table 4.

Quotes describing parental fears for the immediate survival of the infant

Sub-themes	Quotes
Fear statements from parents	“we were kind of sitting there not knowing if he would live” “watching him being pulled out in full cardiac arrest” “and I was pretty scared. I didn’t think he was going to make it” “[the baby] had been taken out [C-section]... I’m laying there in the room…there’s no baby crying so I just said to my husband, I said, I don’t hear him crying. And he was…watching the chest compressions, which is an image he says he cannot get out of his mind”. “it was kind of scary and sometimes I would just put my hand like this [on infant’s chest]…just to know he was okay because even after he had warmed up, he didn’t really move”.
Provider comments reported by parents	“I finally had to say like, are they alive? And she’s like, oh they’re alive. I’m like, more please? She [stated] well I have bad news. I’m like what are you telling me?” [MD says] “it doesn’t look good; we’re going to have a rough couple of days here. And I’m [parent] like…I didn’t know to the extent of how bad he was at that point so when she [MD] said that to me, that kind of like put me in a whole new frame of mind because it wasn’t just he needed help breathing”

Sub-themes

Quotes

Fear statements from parents

“we were kind of sitting there not knowing if he would live”
“watching him being pulled out in full cardiac arrest”
“and I was pretty scared. I didn’t think he was going to make it”
“[the baby] had been taken out [C-section]... I’m laying there in the room…there’s no baby crying so I just said to my husband, I said, I don’t hear him crying. And he was…watching the chest compressions, which is an image he says he cannot get out of his mind”.
“it was kind of scary and sometimes I would just put my hand like this [on infant’s chest]…just to know he was okay because even after he had warmed up, he didn’t really move”.

Provider comments reported by parents

“I finally had to say like, are they alive? And she’s like, oh they’re alive. I’m like, more please? She [stated] well I have bad news. I’m like what are you telling me?”
[MD says] “it doesn’t look good; we’re going to have a rough couple of days here. And I’m [parent] like…I didn’t know to the extent of how bad he was at that point so when she [MD] said that to me, that kind of like put me in a whole new frame of mind because it wasn’t just he needed help breathing”