Table 1:

Characteristics of the study population in comparison to national population

	Study Population, N = 133	CFPR Data1 N= 28,983
Age at transfer in years (IQR)	20 (19–23)	N/A
Female, %	48	48.4
Caucasians, %	97	93.8
Employed, %	47	48.8
Living independently, %	33	N/A
High school or less education, %	34	31
Public insurance, %	55	44.8
FEV1, % predicted (SD)	69 (24)	67.1
TCS (IQR)	14 (10–18)	N/A
BLSS (SD)	7 (6–9)	N/A

Data presented as median (IQR, interquartile range) and mean (SD, standard deviation) unless otherwise specified

Public insurance includes Medicare/Medicaid and Children’s special health care

N/A, not collected for CFPR

CFPR, Cystic Fibrosis Patient Registry

TCS, treatment complexity score

BLSS, Bob’s level of social support

FEV₁, Forced Expiratory Volume in 1 second