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. Author manuscript; available in PMC: 2020 May 1.
Published in final edited form as: Patient Educ Couns. 2018 Dec 12;102(5):842–849. doi: 10.1016/j.pec.2018.12.009

Table 3.

10 most common classification of risk estimates with hypothetical and real examples. (N = 166 (22%) of 772 risk descriptions).

Type of risk description
Example description Example Source N (%) of descriptions
Aleatory Epistemic
Quantitative, Percentage Qualitative, Implied Range 5 year survival: >99% The chance that I will be free from kidney cancer after 12 years is: (greater than) X% FCCC -Preoperative recurrence calculator 35 (5%)
Quantitative, Time Qualitative, Prefix Estimated median survival: 5 years Predicted median survival: surgery + chemo: X months KCI -Pancreatic Cancer Adjuvant Therapy 35 (5%)
Quantitative, Percentage Quantitative, Confidence Interval 5 year survival: 5–10% 12 months: predicted survival probability: X% (Y-Z) Duke -Second Line Chemotherapy 30 (4%)
Quantitative, Time Quantitative, Range Overall survival time: X-Y years PSA: every X-Y months (for 5y, then every year) FCCC -NCCN guidelines prostate cancer recommended follow-up 27 (3.5%)
Qualitative and quantitative, Percentage Qualitative, Prefix Estimated 5-year survival: X%, low Estimated probabilities for overall survival for this particular rectal cancer patient are: low/medium/ high risk: X%at 5 yrs MAASTRO - Models local recurrences, distant metastases & overall survival 10 (1%)
Quantitative, Frequency Qualitative Estimated survival: X in XXX are alive at the end of 5 years. These numbers are based on a single, small study so may change as further research is reported. If there would be a group of 100 patients with the same characteristics as this individual patient, X patients would have no local recurrence and Y patients would be alive 2 years after the radiotherapy treatment. Due to the fact that a model can never be completely the same as the “real world”, these numbers could be lower or higher, but these are the most likely values MAASTRO - Model local recurrences & overall survival (larynx) 9 (1%)
Qualitative and quantitative, Percentage Quantitative, Confidence Interval Estimated 5-year survival: X%, 95% CI X%, X% Probability of dyspnea >2 within 6 months after the start of R(CH)T: X%. 95% confidence interval Y% - Z% MAASTRO - Model lung dysphagia 4 (<1%)
Quantitative, Percentage Quantitative, Range 5-year survival: between X % and Y% Extracapsular extension (ECE): range: X% to Y% CapCalculator - estimated extent of disease at surgery 4 (<1%)
Quantitative, Percentage Qualitative, Prefix 5-year survival: around X% About 50 percent of patients who do not have organ-confined cancer have long-term freedom from recurrence following surgery MSK - Prostate cancer - preradical prostatectomy 3 (<1%)
Quantitative, Probability Quantitative, Confidence Interval Probability of 5 year survival: X.X, 95% CI X.X, X. X Predicted 12 months survival probability: X (Y-Z confidence interval) Metatstatic Castrate Resistant Prostate Cancer Patients prediction tool 3 (<1%)