Table 1.

Three-step process in establishing a larger multidisciplinary team

Steps	Participants	Main Action
Step 1	A single physician who has a passion for TSC	• Treat patients with TSC • Liaise with patient families, organizations, and other physicians • Identify a care coordinator • Initial drive of the MDT process
Step 2	Core team (comprising a care coordinator and members of the core medical specialties)	• Liaise with patients/families • Coordinate physicians for management decisions • Organize patient follow-up and referrals • Liaise with other centers • Collaborate with TSC patient organization if available and able
Step 3	Full MDT and reference network with the assistance of the care coordinator	• Operational MDT

MDT multidisciplinary team, TSC tuberous sclerosis complex