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. 2019 May 1;14(5):e0216303. doi: 10.1371/journal.pone.0216303

Table 5. Findings of phase 4—research priorities, themes and potential research questions.

Research priorities Rationale for the choice by participants Themes Potential research questions to be answered
Theme 1: Empower residents/patients to take charge of their health • Need for moving towards new models of care with patient-centred approach
• Patient perspectives and needs overlooked
• Empowerment improves chronic disease management
• Health education for members of community
• Care needs of residents/patients
• Avoiding medicalisation of social problems
• What behavioural modification interventions are effective for different segments of patients/residents?
• How can we increase public awareness of personal responsibility for health? How effective are the existing education programmes on self-management?
• How can we empower patients with usable tools, personal coaching and virtual care?
• What are patients’ expectations and concerns? How to dispel misconceptions and misinformation?
• What are the patient’s self-management goals and how do we support them?
Theme 2: Improve care transition and management through relationship building and communication • Concerns about duplication and fragmentation of services
• Limited understanding of one another’s missions and agendas across community partners
• Reported challenges regarding the use of the national information system and competing IT platforms
• Sharing of patients’ information across care continuum
• Communication involving all parties
• How can the various community partners work together more effectively?
• Is there a role for common electronic platforms/apps to create an interactive network for community partners and related parties? Could these devices be used support patients and clients?
• What are the barriers to utilising existing electronic information system such as NEHR (National Electronic Health Record) across the care pathways?
Theme 3: Enhance health-social care interface • Disconnect in services between health and social care
• Lack of information sharing due to absence of shared system
• Integrated health care and social services platform
• Impact of social aspects of life and related support issues on health outcomes
• What is the core and targeted information needed by care providers involved in community health and social care?
• How can we evaluate the performance towards the integrated health and social care system? (structure, function and outcomes and benefits for those who use services)
Theme 4: Improve respite care services for long-term caregivers • Perceived shortage of available respite services
• Lack of awareness of respite services
• Need for support for caregiver wellbeing
• Caregiver training and resilience
• Public awareness of illness with potential stigma (e.g. dementia, end of life)
• Impact on family and others (caregiver depression and fatigue)
• How can we improve the resilience of long-term caregivers? What training is needed?
• What are some available resources in the community to help manage the long-term caregivers? How can we effectively disseminate the information on community resources?
• What is the effectiveness and cost-effectiveness of respite care programmes in supporting informal caregivers?
• How do we facilitate the capacity of volunteers?
Theme 5: Develop primary care as a driving force for care integration • Importance of primary care for population health
• High patient load in public primary care
• Limited involvement of private GPs in population health
• Disconnect between primary care and community partners
• Care coordination
• Continuity of care
• Management of patients with complex care needs in primary care
• How do we evaluate factors that influence general practitioner’s decision to (or not to) refer patients to specialist care and community care?
• What is the prevalence of primary care patients lost to follow-up in the system? What are the risk factors associated with loss to follow-up?
• How can we streamline the prevention efforts in primary care? (e.g. diabetic and eye screening within one centre)
• What are the challenges primary care providers face in managing complex patients in the community? What resources are required?
Theme 6: Capacity building for service providers • Community care providers as central to population health
• Perceived gaps in skill sets, knowledge and capabilities amongst community partners
• Pre-eminence and appeal of specialist care & tertiary healthcare institution
• Awareness of community care services among specialists in acute hospitals
• Upskilling of community care providers through training and education
• What are the perception, knowledge and awareness of community health and social care resources and mechanism among specialists in restructured hospitals?
• Does training and upskilling of community care providers (e.g. nursing home health workers, community mental health workers) lead to improved care outcomes?