Table 4. Barriers to and facilitators of HIV testing: qualitative findings.
Domain: Barriers to getting tested for HIV | ||
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Major theme | Subtheme | Indirect Quote |
Stigma | Community stigma and social isolation | We are socially integrated, so people are afraid the community will know about our status, . . .[and] many people in my community care a lot about what people know and think about them. [If someone is diagnosed with HIV], their social engagement will be affected, and many families will not want their children to socialize with that particular person. In general stigma is an issue. 54-year old Ethiopian male taxi driver |
[Those sharing their HIV positive diagnosis] will be shamed, isolated, victim of gossip . . .not official denial of participation but people will isolate them. 43-year old Ethiopian female educator |
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A member of my community in their right mind will not publicly share a positive HIV diagnosis. They will be isolated, people will not engage with him/her. People in the community will be uneasy around them. They wouldn’t be invited to eat with others from the same plate. 24-year old Kenyan female student |
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Associate HIV diagnosis with death sentence | Another unique aspect is the knowledge the community has about the disease—it is still scary and considered as death sentence—so that worsens stigma . . .So [if someone in my community finds out about someone’s positive HIV status] they will be shocked, as the impression the community has about the disease and the reality about the disease are different. 58-year old Eritrean male health professional |
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Health systems | I think the unique aspect that can worsen stigma is the difficulty of creating rapport with health providers. But once rapport and trust is created with the health care providers, stigma will be less of an issue . . .[But the] absence of trust between community members and health care providers is a major issue. 58-year old Eritrean male health professional |
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Lack of awareness | Knowledge about HIV, risk perception | Misconception about the disease makes people to be scared about their disease and not considering yourself at risk . . . 37-year old Ethiopian male health professional |
People think it won’t happen to them, they consider themselves exceptional 26-year old Ethiopian female student |
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There are also gender differences in expectations…worse for women to be HIV+ because we are already expected to not have many partners, and people think that they have had many partners if HIV+, even if they have only had one partner and got it from them. 18-year old Ethiopian female student |
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HIV-related services | Most people don’t know where to go, especially to places that offer free HIV testing. Most people think it costs a lot of money to get HIV testing. 38-year old female Ethiopian community health worker |
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Prioritizing work over health | Being busy at work and lack of access to services like not having insurance. 41-year old Ethiopian male airport attendant |
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Domain: Facilitators for improving HIV testing rates | ||
Increasing education or awareness | Many are scared to know their result because they are so intimidated by the disease…Education and creating awareness is the way to solve it. 32-year old Somali female health professional |
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Location of testing | Maybe it’s too much, but maybe go to home of person . . . 56-year old Mexican female apartment manager |
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If the testing is provided in a community setting, there will be some issues about their neighbors knowing specially if they are from the same community, but I believe the benefits outweigh negatives as long as the tests are done in private rooms. 54-year old Ethiopian male taxi driver |
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Health systems | Culturally appropriate services | Culturally appropriate services, developing support groups which has social workers, lawyers, volunteer, donors and community members . . . Friendly, short, high confidentiality, interventional, with proper pre and post-test counseling. 58-year old Eritrean male health professional |
Integrating HIV testing into routine care to destigmatize it | Other healthcare services will be welcome but stigma can potentially be an issue with HIV so integrating them may help. 60-year old Ethiopian female health professional |
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It would help if they make HIV testing more as a regular check-up. Don’t put a “sticker” on it [motioning to shirt where a nametag would be], like this is special. Should be regular like cholesterol–you test cholesterol, you test HIV. We as society make stigma by not treating HIV testing as part of routine care. 56-year old Mexican female apartment manager |