Table 1.
Characteristics of all individuals in the study, including those who died in their preferred place and those who did not
| Characteristic | All (%) n = 1047 | Died in their preferred place n = 672 (%) | Did not die in their preferred place n = 131 (%) | No PPD recorded n = 181 | No APD recorded n = 63 |
|---|---|---|---|---|---|
| Gender | |||||
| Male | 377 (36.0) | 223 (33.2) | 51 (38.9) | 76 (42.0) | 27 (42.9) |
| Female | 670 (64.6) | 449 (66.8) | 80 (61.1) | 105 (58.0) | 36 (57.1) |
| Age at death | |||||
| Not completed | 37 (3.5) | 20 (3.0) | 7 (5.3) | 8 (4.4) | 2 (3.2) |
| <79 | 144 (13.8) | 88 (13.1) | 20 (15.3) | 28 (15.5) | 8 (12.7) |
| 80–84 | 173 (16.5) | 114 (17.0) | 19 (29.0) | 30 (16.6) | 10 (15.9) |
| 85–89 | 281 (26.8) | 173 (25.7) | 38 (29.0) | 53 (29.3) | 17 (27.0) |
| 90–94 | 256 (24.5) | 161 (24.0) | 31 (23.7) | 42 (23.2) | 22 (34.9) |
| 95+ | 156 (14.9) | 116 (17.3) | 16 (12.2) | 20 (11.0) | 4 (6.3) |
| Primary diagnosis | |||||
| Dementia | 794 (75.8) | 520 (77.4) | 88 (67.2) | 141 (77.9) | 45 (71.4) |
| Cancer | 105 (10.0) | 56 (8.3) | 22 (16.8) | 20 (11.0) | 7 (11.1) |
| Other | 148 (14.1) | 96 (14.3) | 21 (16.0) | 20 (11.0) | 11 (17.5) |
| Type of dementia | |||||
| Alzheimers | 253 (24.2) | 170 (25.3) | 38 (29.0) | 31 (17.1) | 14 (22.2) |
| Vascular | 229 (21.9) | 150 (22.3) | 25 (19.1) | 43 (23.8) | 11 (17.5) |
| Lewy-body | 29 (2.8) | 20 (3.0) | 4 (3.1) | 2 (1.1) | 3 (4.8) |
| Unspecified | 536 (51.6) | 332 (49.4) | 64 (48.9) | 105 (58.0) | 35 (55.0) |
| WHO performance status | |||||
| 0 | 0 | 0 | 0 | 0 | 0 |
| 1 | 3 (0.3) | 0 | 2 (1.5) | 1 (0.6) | 0 |
| 2 | 22 (2.1) | 8 (1.2) | 4 (3.1) | 9 (5.0) | 1 (1.6) |
| 3 | 140 (13.4) | 68 (10.1) | 31 (23.7) | 31 (17.1) | 10 (15.9) |
| 4 | 882 (84.2) | 596 (88.7) | 94 (71.8) | 140 (77.3) | 52 (82.5) |
| Consent type for CMC record | |||||
| Patient consent | 129 (12.3) | 68 (10.1) | 29 (22.1) | 25 (13.8) | 7 (11.1) |
| ‘Best interests’ decision | 813 (77.7) | 532 (79.2) | 90 (68.7) | 144 (79.6) | 47 (74.6) |
| Lasting Power of Attorney | 105 (10.0) | 72 (10.7) | 12 (9.2) | 12 (6.6) | 9 (14.3) |
| Number of days between record creation and death | |||||
| <50 | 538 (51.4) | 381 (56.7) | 54 (41.2) | 89 (49.2) | 31 (48.7) |
| 51–250 | 339 (32.4) | 200 (29.8) | 58 (44.3) | 68 (37.5) | 24 (37.6) |
| 251–450 | 82 (7.8) | 51 (7.6) | 16 (12.2) | 18 (9.9) | 4 (6.3) |
| >450 | 8 (0.8) | 2 (0.3) | 2 (1.5) | 3 (1.7) | 1 (1.6) |
| Done in retrospect | 43 (4.1) | 38 (5.7) | 1 (0.8) | 3 (1.7) | 3 (4.8) |
| Mean = 80.53 | |||||
| Preferred place of death | |||||
| Care home | 521 (49.8) | 434 (64.6) | 38 (29.0) | 49 (77.8) | |
| Home | 326 (31.1) | 230 (34.2) | 83 (63.4) | 13 (20.6) | |
| Hospice | 15 (1.4) | 5 (0.7) | 9 (6.9) | 1 (1.6) | |
| Hospital | 4 (0.4) | 3 (0.4) | 1 (0.8) | 0 | |
| Unknown | 181 (17.3) | 181 (100.0) | 0 | ||
| CPR decision | |||||
| Not for CPR | 946 (90.4) | 634 (94.4) | 111 (84.7) | 149 (82.3) | 52 (82.6) |
| For CPR | 101 (9.6) | 38 (5.6) | 21 (15.3) | 32 (17.7) | 11 (17.4) |
| Patient capacity re CPR | |||||
| Had capacity | 70 (6.7) | 39 (5.8) | 17 (13.0) | 11 (6.3) | 3 (4.8) |
| No capacity | 802 (76.6) | 538 (80.1) | 89 (67.9) | 129 (71.3) | 46 (73.0) |
| Clinician unsure | 74 (7.1) | 57 (8.5) | 5 (3.8) | 9 (5.0) | 3 (4.8) |
| Not completed | 101 (9.6) | 38 (5.7) | 20 (15.3) | 32 (17.7) | 11 (17.5) |
| Ceiling of treatment | |||||
| Full active treatment | 34 (3.3) | 10 (1.4) | 8 (6.1) | 13 (7.2) | 3 (4.8) |
| Admission to hospital but no CPR | 110 (10.5) | 59 (8.8) | 21 (16.0) | 34 (18.8) | 5 (8.0) |
| Reversible conditions but stay in community | 343 (32.8) | 218 (32.4) | 47 (35.9) | 56 (30.9) | 22 (34.9) |
| Symptomatic only | 338 (32.3) | 252 (37.5) | 25 (19.1) | 41 (22.7) | 20 (31.7) |
| Not completed | 199 (21.1) | 133 (19.8) | 30 (22.9) | 37 (20.4) | 13 (20.6) |
| Actual place of death | |||||
| Care home | 533 (50.9) | 434 (64.6) | 23 (17.6) | 76 (42.0) | |
| Home | 277 (26.5) | 230 (34.2) | 10 (7.6) | 37 (20.4) | |
| Hospital | 127 (12.1) | 3 (0.4) | 78 (59.5) | 50 (27.6) | |
| Hospice | 33 (3.2) | 5 (0.7) | 20 (15.3) | 8 (4.4) | |
| Not completed | 73 (7.0) | 10 (5.5) | 63 (100.0) |