Table 4.
Challenges in Stroke Caregiving | Positive Aspects of Caregiving | Technology-Related Questions | |||||||
---|---|---|---|---|---|---|---|---|---|
Physical | Emotional | Behavioral | Cognitive | Communication | Resources | Smartphone and internet use | Feedback for preliminary website | ||
Focus Group 1 (English) N=3 |
3/3 reported difficulties Problems with walking after stroke |
2/3 reported difficulties 2/3 reported “acceptance of the situation” was a challenge |
2/3 reported difficulties Stroke survivor had issues with talking |
2/3 reported difficulties Memory affected months after stroke |
2/3 reported difficulties Doctor asked them for the “plan” to care for stroke survivor, and she did not know how to respond |
3/3 reported difficulties with time
constraints 3/3 reported a concern with the lack of trained professional caregivers 3/3 reported difficulties with financial resources |
Helping family Improvement of stroke survivor Acceptance of situation Ability to help others |
3/3 use smartphones in their personal life | Resources need to be more connected to
videos Need information about cost, access, and availability of resources Actor examples and demonstrations should be provided Overall design needs to be more professional Log-in form for caregivers requested Add chat forum Typical patient presentations should guide curriculum |
Focus Group 2 (Spanish) N=4 |
2/4 reported difficulties Worried about falls |
3/4 reported difficulties Reported depression, blame on the caregiver 4/4 reported issues with stress management |
1/4 reported difficulties Reported that stroke survivor can be resistant to being helped Impotence is an issue affecting relationship |
4/4 reported difficulties | Reported that not enough information was provided after leaving the hospital | Reported economical issues as an obstacle for helping their stroke survivor | N/A | 3/4 use smartphones in their personal life | Requested information about disability
discounts and out-of-the-house activities for both patient and
caregiver Wanted information on stroke prevention |