| Asia |
Iran |
Electronic Thalassemia Registry (ETR Mazandaran) |
Thalassemia Research Center and Mazandaran University of Medical Sciences |
http://thr.mazums.ac.ir/ |
| Singapore |
National Thalassemia Registry (NTR) |
KK Women's and Children's Hospital |
https://www.kkh.com.sg |
| Oman |
National Register of Symptomatic Hemoglobinopathies |
Genetic Blood Disorders Unit and Ministry of Health |
Unknown |
| Saudi Arabia |
Pediatric Non-Malignant Blood DisordersRegistry |
King Faisal Specialist Hospital |
Unknown |
| Europe |
Bulgaria |
National Registry of Patients with Thalassemia in Bulgaria (NRPTB) |
Bulgarian Association for Promotion of Education and Science and Information Centre for Rare Diseases |
https://www.raredis.org |
| United Kingdom |
National Haemoglobinopathy Registry (NHR) |
National Health Service |
http://nhr.nhs.uk |
| European Haemoglobinopathy Registry(EHR) |
National Health Service |
https://www.sicklecellsociety.org/resource/european-haemoglobinopathy-registry/ |
| France |
Register of Thalassemic Patients in France |
National Institute of Health and Medical Research and National Institute of Health Surveillance |
https://www.ap-hm.fr |
| Italy |
Italian Multiregional Thalassemia Registry (HTA-Thal) |
Consorzio per Valutazioni Biologichee Farmacologiche and Fondazione per la Ricerca Farmacologica Gianni Benzi Onlus |
http://www.cvbf.net/tag/hta-thal-registry |
| Sicilian Registry Thalassemia and Hemoglobinopathies (ReSTE) |
Epidemiological Observatory of the Regional Councillorship |
http://pti.regione.sicilia.it |
| Greece |
National Registry for Haemoglobinopathies in Greece (NRHG) |
Greek Society of Hematology |
http://www.enerca.org/members-centers/center/22/national-center-for-thalassaemia-and-haemoglobinopathies-of-laikon-general-hospital-of-athens-greece |
| Spain |
National Registry of Hemoglobinopathies in Spain (REPHem) |
Spanish Society of Pediatric Hematology and Oncology |
https://www.e-clinical.org/rephem/index.aspx |
| Turkey |
Turkish Hemoglobinopathy Registry |
Turkish Society of Pediatric Hematology |
http://www.tphd.org.tr/ |
| North America |
United States |
Registry and Surveillance System for Hemoglobinopathies (RuSH) |
Centers for Disease Control and National Heart, Lung, and Blood Institute |
https://www.cdc.gov |
| Canada |
Data Information System for Hemoglobinopathies(DISH) |
Children’s Hospital of Eastern Ontario |
https://www.project-redcap.org/ |
| Oceania |
Australia |
Haemoglobinopathy Registry (HbR) |
Monash University |
http://www.torc.org.au/hbr |
