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. Author manuscript; available in PMC: 2020 Feb 15.
Published in final edited form as: Horm Res Paediatr. 2019 Feb 15;90(6):368–380. doi: 10.1159/000496114

Table 2.

Participant group demographic and diagnostic information (n = 197)

Children
Age (yrs), median (range) 6.7 (1 day – 22.5 years)
White, n (%) 137 (69.5)
Hispanic, n (%) 57 (28.9)
Gender at time of study, n (%)
 Girl 117 (59.4)
 Boya 79 (40.1)
 Gender-neutral 1 (0.5)
Gender n (% of category)
DSD category, n (%) Girl Boy Gender-neutral

 Sex chromosome DSD 20 (10.2) 7 (35.0) 13 (65.0) 0 (0.0)
 46,XY DSD 82 (41.6) 30 (36.6) 52 (63.4)a 0 (0.0)
 46,XX DSD 83 (42.1) 73 (88.0) 9 (10.8) 1 (1.2)
 Karyotype unavailable 12 (6.1) 7 (58.3) 5 (41.7) 0 (0.0)

Caregiver Informants

 Mother, n (%) 150 (76.1)
 White, n (%) 138 (70.1)
Educational background n (%)b
  ≤ High school education 43 (21.8)
  College courses/degrees 113 (57.4)
  Postgraduate education 39 (19.8)
a

Includes one youth who was assigned female gender at birth but in adolescence self-initiated reassignment to male gender.

b

Educational background missing for 2 caregivers