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. Author manuscript; available in PMC: 2019 May 13.
Published in final edited form as: J Alzheimers Dis. 2019;69(1):123–133. doi: 10.3233/JAD-181159

Table 5.

Site Practices and Satisfaction

Variable N (%)
Blood or other specimens expected from all participants
 Yes 26 (89.7)
 No 3 (10.3)
Frequently that participants are asked to provide a blood sample
 At the first ADC visit only 5 (17.9)
 On certain assessments only 4 (14.3)
 At least every annual assessment 19 (67.9)
Participants groups who are less likely to agree to blood sample provision
 Yes 9 (31.0)
 No 20 (69.0)
Who asks if participant will consent to blood sample
 Cognitive tester 11 (37.9)
 Physician 8 (27.6)
 Nurse practitioner 7 (24.1)
 Social worker 5 (17.2)
 Phlebotomist 1 (3.4)
 Others 17 (58.6)
When participants are asked to provide a blood sample
 Prior to cognitive testing 22 (75.9)
 During a break in cognitive testing 1 (3.4)
 After cognitive testing 1 (3.4)
 Variable, no set time 5 (17.2)
When participants provide blood samples
 Prior to cognitive testing 8 (27.6)
 After cognitive testing 7 (24.1)
 Variable, no set time 14 (48.3)
Center provides educational materials about blood sample provision
 Yes 6 (20.7)
 No 23 (79.3)
Satisfaction with genetic engagement
 Not at all 2 (7.1)
 A little 1 (3.6)
 Somewhat 7 (25.0)
 Very 9 (32.1)
 Extremely 9 (32.1)