Table 1. IMPRESS case studies and their organisation of PPI.
Case Study | Type of research | PPI model, PPI roles | PPI forums | Interview |
---|---|---|---|---|
1 | Mixed methods: evaluation |
Intertwined PPI with outreach 4 x PPI (1 x Advisory group; 1 x Advisory Group + Co-researcher; 1 x national patient rep; 1 x Hospital advocacy officer) |
Advisory group+ Co-researcher | Res = 2 PPI = 2 |
2 | Mixed-methods: service mapping and health economic costing |
Intertwined PPI 8 x PPI recruited for previous linked study. |
Advisory group | Res = 5 PPI = 5 |
3 | Mixed methods: physiological monitoring and qualitative |
One off PPI 9 x PPI recruited through a local patient day centre |
PPI day- pilot work | Res = 1 PPI = 0 |
4 | Mixed methods. Participatory Research |
Intertwined PPI 9 x PPI Duel role (both research participants and co-researchers). Steering group includes 1 x parent/carer collaborators |
Co-researchers Steering group | Res = 2 PPI = 0 |
5 | Secondary data analysis |
One-off PPI 2 x projects in theme consulted PPI panel |
Telephone consultations and meetings with service users regarding patient pathways and design and timings of questionnaires | Res = 2 PPI = 0 |
6 | Mixed methods: exploratory design and systematic review |
Intertwined PPI with outreach PPI from previous study fed into research questions. Wide consultation by CI of local SU groups. 4 x PPI on current project + 1 x PPI co-researcher piloted the data extraction tool |
PPI from 2 previous projects fed into CS06. Face-to-face consult with local SU charities/orgs etc.; Project steering group stakeholder group |
Res = 2 PPI = 2 |
7 | Systematic Review |
One-off PPI group (of SU) set up for previous study consulted in development of this study 2x local PPI groups (general PPI) |
Virtual, via e-mail/post with one PPI group. Face-to-face with another PPI group. Comment on protocol and suggest questions for literature review |
Res = 4 PPI = 1 |
8 | Mixed Methods: document analysis, observations and systematic review. | None | Res = 2 PPI = 1 |
|
9 | Qualitative: Evaluation |
One off The project has had difficulty with securing a clear direction and has struggled with defining and implementing PPI. (Carer Collaborator) |
PPI contributors and other stakeholder reviewed project proposal; advised on the advertising of the project to service users and Collaborator) with the writing of a lay summary | Res = 2 PPI = 1 |
10 | Mixed methods |
Intertwined PPI group (generic) |
Advisory group also advising on documents and processes. | Res = 2 PPI = 1 |
Abbreviations: Res = Researcher, PPI = Patient and Public Involvement contributor, SU = Service User, CI = Chief Investigator.