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. 2019 May 14;14(5):e0215953. doi: 10.1371/journal.pone.0215953

Table 1. IMPRESS case studies and their organisation of PPI.

Case Study Type of research PPI model, PPI roles PPI forums Interview
1 Mixed methods: evaluation Intertwined PPI with outreach
4 x PPI (1 x Advisory group; 1 x Advisory Group + Co-researcher; 1 x national patient rep; 1 x Hospital advocacy officer)
Advisory group+ Co-researcher Res = 2
PPI = 2
2 Mixed-methods: service mapping and health economic costing Intertwined PPI
8 x PPI recruited for previous linked study.
Advisory group Res = 5
PPI = 5
3 Mixed methods: physiological monitoring and qualitative One off PPI
9 x PPI recruited through a local patient day centre
PPI day- pilot work Res = 1
PPI = 0
4 Mixed methods. Participatory Research Intertwined PPI
9 x PPI Duel role (both research participants and co-researchers).
Steering group includes 1 x parent/carer collaborators
Co-researchers Steering group Res = 2
PPI = 0
5 Secondary data analysis One-off PPI
2 x projects in theme consulted PPI panel
Telephone consultations and meetings with service users regarding patient pathways and design and timings of questionnaires Res = 2
PPI = 0
6 Mixed methods: exploratory design and systematic review Intertwined PPI with outreach
PPI from previous study fed into research questions. Wide consultation by CI of local SU groups.
4 x PPI on current project + 1 x PPI co-researcher piloted the data extraction tool
PPI from 2 previous projects fed into CS06. Face-to-face consult with local SU charities/orgs etc.; Project steering group
stakeholder group
Res = 2
PPI = 2
7 Systematic Review One-off
PPI group (of SU) set up for previous study consulted in development of this study
2x local PPI groups (general PPI)
Virtual, via e-mail/post with one PPI group. Face-to-face with another PPI group.
Comment on protocol and suggest questions for literature review
Res = 4
PPI = 1
8 Mixed Methods: document analysis, observations and systematic review. None Res = 2
PPI = 1
9 Qualitative: Evaluation One off
The project has had difficulty with securing a clear direction and has struggled with defining and implementing PPI.
(Carer Collaborator)
PPI contributors and other stakeholder reviewed project proposal; advised on the advertising of the project to service users and Collaborator) with the writing of a lay summary Res = 2
PPI = 1
10 Mixed methods Intertwined
PPI group (generic)
Advisory group also advising on documents and processes. Res = 2
PPI = 1

Abbreviations: Res = Researcher, PPI = Patient and Public Involvement contributor, SU = Service User, CI = Chief Investigator.