Table 4.
Participants' agreement with guidelines as they relate to their service
| NICE Guideline/EAPC Recommendation | Strongly Disagree | Disagree | Neither Agree nor Disagree | Agree | Strongly Agree |
|---|---|---|---|---|---|
| N (%) | |||||
| Advance care planning should start as soon as the diagnosis is made (EAPC recommendation) | 0 (0) | 4 (8.9) | 14 (31.1) | 11 (24.4) | 16 (35.6) |
| Professionals should discuss advance statements and advance decisions to refuse treatment with the person with dementia and their carer, while the patient still has capacity (NICE guidelines) | 0 (0) | 1 (2.2) | 2 (4.4) | 13 (28.9) | 29 (64.4) |
| Professionals should discuss lasting power of attorney with the person with dementia and their carer, while the patient still has capacity (NICE guideline) | 0 (0) | 0 (0) | 0 (0) | 12 (26.7) | 33 (73.3) |
| Professionals should discuss preferred place of care plans with the person with dementia and their carer, while the patient still has capacity (NICE guideline) | 0 (0) | 0 (0) | 3 (6.7) | 19 (42.2) | 23 (51.1) |
| Any advance care plans should be revisited with the patient and family on a regular basis (EAPC recommendation) | 0 (0) | 0 (0) | 8 (17.8) | 14 (31.1) | 23 (51.1) |
| Professionals should discuss the progressive course of dementia (EAPC recommendation) | 0 (0) | 0 (0) | 3 (6.7) | 15 (33.3) | 27 (60.0) |
| Professionals should discuss the terminal nature of dementia (EAPC recommendation) | 0 (0) | 2 (4.4) | 19 (42.2) | 9 (20.0) | 15 (33.3) |
| Professionals should assess religious affiliation and involvement, sources of spiritual support, and the spiritual well‐being of patients and their families (EAPC recommendation) | 0 (0) | 2 (4.4) | 13 (28.9) | 12 (26.7) | 18 (40.0) |
| Bereavement support should be offered to carers following a dementia diagnosis (EAPC recommendation) | 0 (0) | 2 (4.4) | 24 (53.3) | 9 (20.0) | 10 (22.2) |