Table 2.
Responses to IEXPAC items
| IEXPAC item | Proportion of patients (%) who responded “always” or “mostly” to each item | |||||
|---|---|---|---|---|---|---|
| All patients (n = 1618) | Rheumatic disease (n = 359) | IBD (n = 341) | HIV (n = 467) | DM (n = 451) | p value | |
| 1. They respect my lifestyle. The professionals who care for me listen to me and ask me about my needs, habits and preferences to adapt my treatment and care plan (n = 1591) | 81.5 | 76.5 | 75.1 | 89.6 | 81.9 | < 0.001 |
| 2. They are coordinated to offer good healthcare to me. Health and social care services are coordinated to improve my well-being and quality of life in my environment (family, neighborhood, town) (n = 1533) | 69.3 | 60.6 | 61.9 | 76.8 | 73.3 | < 0.001 |
| 3. They help me to get information from the internet. The professionals who care for me inform me about trustful web pages and internet forums that I can consult to better know my disease, its treatment, and possible consequences on my life (n = 1531) | 15.0 | 12.8 | 19.0 | 19.8 | 8.3 | < 0.001 |
| 4. Now I can take care of myself better. I feel that my confidence in my ability to take care of myself, manage my health problems and keep my autonomy has improved (n = 1529) | 81.0 | 74.3 | 79.3 | 89.7 | 78.3 | < 0.001 |
| 5. They ask me and help me to follow my treatment plan. I regularly review adherence to my treatment and care plan with the professionals who care for me (n = 1534) | 79.8 | 73.5 | 77.8 | 87.6 | 78.2 | < 0.001 |
| 6. We set goals for a healthy life and better control my illness. I’ve been able to agree with the professionals who care for me about specific objectives for diet, physical exercise and medication to get better control of my health problems (n = 1536) | 70.1 | 63.4 | 62.6 | 74.7 | 76.1 | < 0.001 |
| 7. I can use the internet and my mobile phone to consult my medical records. I can consult my clinical records, test results, programmed visits, and access other services through the internet or mobile app of my health service (n = 1521) | 7.2 | 7.3 | 5.5 | 8.6 | 7.1 | 0.529 |
| 8. They make sure that I take medication correctly. The professionals who care for me review with me all of the medication I take, how I take it, and how it suits me (n = 1543) | 76.0 | 72.4 | 73.7 | 83.5 | 72.9 | < 0.001 |
| 9. They worry about my welfare. The professionals who care for me are concerned with my quality of life, and I feel they are committed to my well-being (n = 1547) | 84.3 | 79.1 | 80.4 | 91.5 | 83.8 | < 0.001 |
| 10. I have been informed about health and social resources that can help me. The professionals who care for me inform me about the health and social resources available in my neighborhood or town that I can use to improve my health problems and take better care of myself (n = 1515) | 41.3 | 33.8 | 32.3 | 52.6 | 42.3 | < 0.001 |
| 11. They encourage me to talk to other patients. The professionals who care for me invite me to participate in patient groups to share information and experiences about how to care for ourselves and improve our health (n = 1513) | 14.9 | 10.3 | 15.7 | 20.4 | 12.0 | < 0.001 |
| Respond to the following statement only if you have been admitted to hospital in the last 3 years: | ||||||
| 12. They care about me when I come home after being in hospital. After hospital discharge, they called or visited me at home to see how I was and what care I needed (n = 780) | 30.6 | 25.7 | 28.9 | 33.0 | 32.8 | 0.205 |
DM diabetes mellitus, HIV human immunodeficiency virus, IBD inflammatory bowel disease, IEXPAC Instrument for Evaluation of the Experience of Chronic Patients