Introduction |
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Physical aspects of care |
Symptom management |
Thinking about your heart failure (HF), which symptoms most affect your quality of life? |
Psychological aspects of care |
Psychological management |
Many people living with HF say they experience depression, sadness, or anxiety. I’m curious about your experiences with depression or anxiety since you were diagnosed with HF. Have you had any feelings of sadness or depression? What about feelings of anxiety? |
Social aspects of care |
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How do you feel that your HF has impacted your relationships with your loved ones? |
Spiritual aspects of care |
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What role does spirituality play in your life? How do your spiritual practices impact how you deal with having HF? |
Ethical and legal aspects of care |
Prognostication, communication preferences, and advance care planning |
How much do you want to know about the future with heart failure? Could you tell me about your experiences in making preparations for healthcare if your heart failure gets worse? Have you made an advance directive or living will? |
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Device-specific preferences |
Do you have a cardiac device, like a defibrillator, or a pump? What kind of discussions have you and your cardiologist had about that device if your HF gets worse? |
Outcomes that matter to patients with HF |
Goals of treatment |
What are you hoping to get out of your healthcare regarding HF? |
Perceptions of supportive care |
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How familiar are you with the term “supportive care”? Can you please tell me what you know or what you’ve heard about it? |
Perceptions of palliative care |
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Do you think there will come a point in the progression of your HF where you’d like to see a palliative care specialist? What would that/those points be? |
Closing |
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Given everything we’ve talked about today, what does/would high-quality HF care look like to you? |