Table 3.
Patients’ report of the value of Decision Boxes per round: ratings based on the patient version of the Information Assessment Method40
| Frequency (n/N) | ||||
| Round 1 | Round 2 | Round 3 | All round | |
| Relevance | ||||
| This information is… | ||||
| … totally relevant | 3/9 | 0/7* | 0/5* | 3/21 |
| … relevant | 6/9 | 4/7* | 5/5* | 15/21 |
| … somewhat relevant | 0/9 | 1/7* | 0/5* | 1/21 |
| … irrelevant | 0/9 | 2/7* | 0/5* | 2/21 |
| Understanding | ||||
| They understood this information… | ||||
| … completely | 3/9 | 3/7* | 1/5* | 7/21 |
| … mostly | 4/9 | 1/7* | 2/5* | 7/21 |
| … poorly | 1/9 | 2/7* | 2/5* | 5/21 |
| … not at all | 1/9 | 1/7* | 0/5* | 2/21 |
| Cognitive impact of the information | ||||
| They learnt something new | 4/9 | 0/8 | 2/6 | 6/23 |
| This information allowed them to confirm what they do, or did | 5/9 | 3/8 | 2/6 | 10/23 |
| They are reassured | 6/9 | 1/8 | 3/6 | 10/23 |
| They were reminded of something they already knew | 5/9 | 1/8 | 1/6 | 7/23 |
| They are motivated to learn more | 4/9 | 2/8 | 4/6 | 10/23 |
| There is a problem with the presentation of this information | 5/9 | 1/8 | 2/6 | 8/23 |
| They disagree with the content of this information | 0/9 | 0/8 | 0/6 | 0/23 |
| This information is potentially harmful | 1/9 | 1/8 | 0/6 | 2/23 |
| Information use | ||||
| They will use this information This information will… |
5/9 | 4/8 | 2/6 | 11/23 |
| …help them improve their understanding of a particular issue and make a decision | 3/5 | 1/4 | 0/2 | 4/11 |
| …help them do something when they did not know what to do | 2/5 | 0/4 | 0/2 | 2/11 |
| …convince them to do something that they already wanted to do | 1/5 | 1/4 | 0/2 | 2/11 |
| …allow them to change the way they do something | 2/5 | 1/4 | 0/2 | 3/11 |
| …allow discussing something with someone else (a relative or a healthcare professional) | 5/5 | 2/4 | 1/2 | 8/11 |
| Expected benefits of the information | ||||
| They expect the information to help… | ||||
| …be less worried | 2/5 | 0/4 | 0/2 | 2/11 |
| …be better equipped to discuss something with someone else (a relative or a healthcare professional) | 4/5 | 3/4 | 2/2 | 9/11 |
| …have more confidence in deciding something with someone else (a relative or a healthcare professional) | 3/5 | 1/4 | 1/2 | 5/11 |
| …handle an issue | 2/5 | 1/4 | 0/2 | 3/11 |
| …prevent an issue (or prevent it from getting worse) | 4/5 | 0/4 | 0/2 | 4/11 |
| They expect no benefits | 2/5 | 0/4 | 0/2 | 2/11 |
| Expected consequences | ||||
| They expect that the use of this information can have a negative impact on their well-being of their health | 1/5 | 1/4 | 0/2 | 2/11 |
*One missing data.