Table 4.
Caregivers’ report of the value of Decision Boxes per round: ratings based on the patient version of the Information Assessment Method40
| Frequency (n/N) | ||||
| Round 1 | Round 2 | Round 3 | All round | |
| Relevance | ||||
| This information is… | ||||
| … totally relevant | 3/11 | 6/10 | 2/6 | 11/27 |
| … relevant | 8/11 | 4/10 | 3/6 | 15/27 |
| … somewhat relevant | 0/11 | 0/10 | 1/6 | 1/27 |
| … irrelevant | 0/11 | 0/10 | 0/6 | 0/27 |
| Understanding | ||||
| They understood this information… | ||||
| … completely | 4/11 | 8/10 | 3/6 | 15/27 |
| …mostly | 6/11 | 2/10 | 3/6 | 11/27 |
| …poorly | 1/11 | 0/10 | 0/6 | 1/27 |
| …not at all | 0/11 | 0/10 | 0/6 | 0/27 |
| Cognitive impact of the information | ||||
| They learnt something new | 2/11 | 5/10 | 5/6 | 12/27 |
| This information allowed them to confirm what they do, or did | 6/11 | 5/10 | 2/6 | 13/27 |
| They are reassured | 1/11 | 4/10 | 4/6 | 9/27 |
| They were reminded of something they already knew | 3/11 | 3/10 | 2/6 | 8/27 |
| They are motivated to learn more | 4/11 | 6/10 | 2/6 | 12/27 |
| There is a problem with the presentation of this information | 4/11 | 2/10 | 1/6 | 7/27 |
| They disagree with the content of this information | 2/11 | 0/10 | 0/6 | 2/27 |
| This information is potentially harmful | 1/11 | 0/10 | 0/6 | 1/27 |
| Information use | ||||
| They will use this information | 7/11 | 9/10 | 6/6 | 22/27 |
| This information will… | ||||
| …help them improve their understanding of a particular issue and make a decision | 1/7 | 2/9 | 4/6 | 7/22 |
| …help them do something when they did not know what to do | 0/7 | 0/9 | 1/6 | 1/22 |
| …convince them to do something that they already wanted to do | 2/7 | 2/9 | 3/6 | 7/22 |
| …allow them to change the way they do something | 0/7 | 1/9 | 2/6 | 3/22 |
| …allow discussing something with someone else (a relative or a healthcare professional) | 2/7 | 6/9 | 2/6 | 10/22 |
| Expected benefits of the information | ||||
| They expect the information to help them… | ||||
| …be less worried | 0/7 | 4/9 | 4/6 | 8/22 |
| …be better equipped to discuss something with someone else (a relative or a healthcare professional) | 6/7 | 7/9 | 4/6 | 17/22 |
| …have more confidence in deciding something with someone else (a relative or a healthcare professional) | 2/7 | 3/9 | 2/6 | 7/22 |
| …handle an issue | 1/7 | 3/9 | 2/6 | 6/22 |
| …prevent an issue (or prevent it from getting worse) | 2/7 | 3/9 | 6/6 | 11/22 |
| They expect no benefits | 0/7 | 0/9 | 0/6 | 0/22 |
| Expected consequences | ||||
| They expect that the use of this information can have a negative impact on their well-being of their health | 0/7 | 1/9 | 0/6 | 1/22 |