Table 2.
Research Phase | Challenges | Actions | Costs |
---|---|---|---|
Grant writing |
- Limited experience with co-design research - Limited knowledge of recruitment strategies - Limited anticipation of time, human resources, and costs associated with recruitment |
Engaging one family caregiver on the research team at the time of grant writing - Self-training the co-design research within limited time |
- Stress and time pressure especially close to the grant submission time |
Planning for data collection |
- Limited familiarity with family caregiver’s context and realities - Non-feasibility of research methods in the original grant proposal |
(Re) co-designing methods with trusted community caregivers organizations |
- Traveling costs to visit community partners - Time to build trust with community partners |
Data collection |
- Ensuring shared understanding and building trust - Accommodating family caregivers’ preferences for time and locations - Prolonged data collection process longer than anticipated |
- Frequent email communications with interested family caregivers prior to FGs - Seeking extension from funder |
- Time - Long distance travels - Working with limited financial and human resources |
Recruitment Strategies | |||
Partnering with caregiver organizations |
- Slow and lengthy process due to missing resources, mutual misunderstanding, and absent trust - Misalignment of values, roles and expectations |
- Constant communications with to build trust and to (re)co-design the research methodology | - Human, time, and financial resources |
Social and print media |
- High cost compared to least effectiveness - Receiving many irrelevant email inquiries |
- Designing professional social and print media |
- High financial cost - Time |
Flyers in geriatrics clinics | Clinic staff time constraints, bureaucratic rules and procedures, and potential of perceived competing interests | - Designing professional yet lay-public friendly flyers | - Time and financial resources associated with designing professional flyers |
Traditional snowball sampling |
-Least effective in recruiting - Relying on word-of-mouth referrals |
- Seeking recruited family caregivers to engage other family caregivers | - Time |