TABLE 1.
Participant demographics and characteristics. Mean, standard deviation (SD) and range are reported for participants’ age in years and body mass index (BMI) centile. Median and range are reported for Beighton score. Participant sex and type of Ehlers–Danlos Syndrome (EDS) are reported as number of participants and percent of the total. These characteristics are divided by participants who answered the Pittsburgh Sleep Quality Index (PSQI), Brief Pain Inventory (BPI), and all participants
| PSQI | BPI | Total | |||||||
|---|---|---|---|---|---|---|---|---|---|
| Mean/ median | SD | Range | Mean/ median | SD | Range | Mean/ median | SD | ||
| Age (years) | 14.9 | 2.52 | 7–18 | 15.3 | 2.16 | 10–18 | 14 | 3.6 | |
| BMI centile | 57.6 | 26.3 | 0.78–99.4 | 57.5 | 24.4 | 0.78–88.3 | 0.575 | 27.2 | |
| Beighton score | 8/9 | 4–9 | 8/9 | 4–9 | 7/9 | ||||
| n (%) | n (%) | n (%) | |||||||
| Male | 8 (32.0) | 4 (16.7) | 13 (31.7) | ||||||
| Female | 17 (68.0) | 20 (83.3) | 28 (68.3) | ||||||
| EDS-Classical | 3 (12.0) | 3 (12.5) | 6 (14.6) | ||||||
| EDS-Hypermobility | 9 (36.0) | 8 (33.3) | 10 (24.4) | ||||||
| EDS-unspecified | 13 (52.0) | 13 (54.2) | 25 (61.0) | ||||||