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. Author manuscript; available in PMC: 2019 May 21.
Published in final edited form as: J Clin Epidemiol. 2017 Apr 20;89:136–141. doi: 10.1016/j.jclinepi.2017.04.014

Table 1.

Users, uses, and examples of patient reported outcomes.

Users Importance Components Examples
A. Clinical Management of Patients
Clinicians; Patients / caretakers Participate in share decision-making and treat what matters to patients • Screening across domains of health – referral as needed

• Diagnosis and prognosis


• Assessments of disease activity/severity and monitoring of treatment


• Facilitating shared decision-making and matching patients with treatments


• Setting treatment and self-management goals and monitoring progress at and between visits
PHQ-9, PROMIS


WOMAC, Oswestry Disability Index, Roland Morris Disability Questionnaire


RAPID3 ICF frameworks


Rheumatoid Arthritis Patient Priorities for Pharmacologic Interventions


Wheelchair Outcome Measure, EORTC-QLQ30
B. Developing New Programs and Matching Patients to Treatments
Multidisciplinary care teams; Health professional organizations; pharma Ensuring patients get the right treatments for them
• Identifying vulnerable people -- unmet needs and gaps in care

• Developing multicomponent and stepped care programs

Monitoring older adults with new drug prescriptions

STarT Back screening tool
C. Assessing Performance and Creating Learning Healthcare Systems
Administrators; Payers; Health service administrators; policymakers Optimizing equity, efficiency, and cost effectiveness • Identifying optimal approaches and settings
• Continuous quality improvement through benchmarking
• Identifying needs and gaps in services

UK PROM in surgery

Note: See supplemental table for references to patient-reported outcome measures