Table 1.
Users | Importance | Components | Examples |
---|---|---|---|
A. Clinical Management of Patients | |||
Clinicians; Patients / caretakers | Participate in share decision-making and treat what matters to patients | • Screening across domains of health – referral as needed • Diagnosis and prognosis • Assessments of disease activity/severity and monitoring of treatment • Facilitating shared decision-making and matching patients with treatments • Setting treatment and self-management goals and monitoring progress at and between visits |
PHQ-9, PROMIS WOMAC, Oswestry Disability Index, Roland Morris Disability Questionnaire RAPID3 ICF frameworks Rheumatoid Arthritis Patient Priorities for Pharmacologic Interventions Wheelchair Outcome Measure, EORTC-QLQ30 |
B. Developing New Programs and Matching Patients to Treatments | |||
Multidisciplinary care teams; Health professional organizations; pharma | Ensuring patients get the right treatments for them |
• Identifying vulnerable people -- unmet needs and gaps in care • Developing multicomponent and stepped care programs |
Monitoring older adults with new drug prescriptions STarT Back screening tool |
C. Assessing Performance and Creating Learning Healthcare Systems | |||
Administrators; Payers; Health service administrators; policymakers | Optimizing equity, efficiency, and cost effectiveness | • Identifying optimal approaches and settings • Continuous quality improvement through benchmarking • Identifying needs and gaps in services |
UK PROM in surgery |
Note: See supplemental table for references to patient-reported outcome measures