Table 1.
Demographics and sample characteristics (n=202)
| Variable | Group | n | % |
|---|---|---|---|
| Race (check all that apply) | Caucasian | 185 | 91.58 |
| Asian American/Pacific Islander | 5 | 2.48 | |
| African American | 2 | 0.99 | |
| Native American | 0 | 0 | |
| Other | 14 | 6.93 | |
| Ethnicity | Not Hispanic or Latino | 187 | 92.57 |
| Hispanic or Latino | 14 | 6.93 | |
| Not disclosed | 1 | 0.50 | |
| Current Marital Status | Single/Never Married | 4 | 1.98 |
| Married or long-term committed relationship | 172 | 85.15 | |
| Divorced or Separated | 23 | 11.39 | |
| Widowed | 3 | 1.48 | |
| Highest Level of Education | Grade school or middle school | 0 | 0 |
| High School/GED | 11 | 5.45 | |
| Some College/Technical School | 45 | 22.28 | |
| Completed College | 94 | 46.53 | |
| Post-Baccalaureate Degree | 52 | 25.74 | |
| Annual Income | Under $50,000 | 29 | 14.36 |
| $50,000 - $99,999 | 83 | 41.09 | |
| $100,000 - $149,999 | 39 | 19.31 | |
| $150,000 - $199,999 | 29 | 14.36 | |
| Greater than $200,000 | 18 | 8.91 | |
| Not disclosed | 4 | 1.98 | |
| Employment Level of Mother | All of my time is spent caring for my family | 65 | 32.18 |
| Part-time job or school | 97 | 48.02 | |
| Full-time job or school | 40 | 19.80 | |
| Diagnosis of Child with DBMD | Duchenne | 170 | 84.62 |
| Becker | 23 | 10.86 | |
| Intermediate Phenotype | 9 | 4.52 | |
| Age at Diagnosis of Oldest child with DBMD | Prenatally | 2 | 0.99 |
| 0-3 years | 79 | 39.11 | |
| 4-7 years | 97 | 48.02 | |
| 8-12 years | 21 | 10.40 | |
| >12 years | 3 | 1.49 | |
| Functional Status of Oldest Child with DBMD | Presymptomatic | 14 | 6.93 |
| Early-ambulatory | 64 | 31.68 | |
| Late-ambulatory | 33 | 16.34 | |
| Early non-ambulatory | 9 | 4.46 | |
| Non-ambulatory I | 45 | 22.28 | |
| Non-ambulatory II | 29 | 14.36 | |
| Non-ambulatory III | 8 | 3.96 | |
| Current Age of Oldest Child with DMBD | ≤4 | 7 | 3.47 |
| 5-9 | 54 | 26.73 | |
| 10-14 | 60 | 29.70 | |
| 15-18 | 30 | 14.85 | |
| 19-22 | 25 | 12.38 | |
| ≥23 | 26 | 12.87 |