Table 3.
Level of Response | Scenario By Caregiver Type | % of responses | Example from student responses |
---|---|---|---|
Level 1, Generic Non-specific response to caregiver type | Manager | 43% | Make sure everyone is on the same page |
Carrier | 31% | Seek support | |
Partner | 51% | Suggest additional help | |
Lone | 47% | Provide support | |
Level 2, Mastery Responsive to caregiver type with clear inclusion of one caregiver- specific action, indicating mastery | Manager | 44% | Speak to all family |
Carrier | 43% | I will encourage her to use the support of her family | |
Partner | 42% | Ask what the caregiver needs from the healthcare team | |
Lone | 25% | One-on-one conversation | |
Level 3, High Mastery Responsive to caregiver type with clear inclusion of two caregiver- specific actions, indicating high mastery | Manager | 6% | Discuss a process; Give options; Discuss consequences of quick decisions |
Carrier | 12% | Take some time out of the day just for you; talk to your parents and talk to the family to try and let them help you | |
Partner | 1.5% | Facilitate family meetings to discuss caregiving and support. Ask “what do you need from the team? “ and “How are you holding up?” | |
Lone | 10% | Use simple and clear language; one to one conversation | |
Level 4, Highest Mastery Responsive to caregiver type with clear inclusion of three caregiver specifications, indicating highest mastery | Manager | 0% | |
Carrier | 1.5% | It is important to tell the caregiver she is doing an excellent job as a caregiver; provide emotional support and encouragement for the work he is doing and stress the importance of self-care. Encourage him to share his feelings about caregiving and how it has impacted life. Remind caregiver to do something for himself everyday. Even if it is just 15 minutes | |
Partner | 1% | Encourage the caregiver to continue what they are doing and thank them for their work. Provide as much information as possible so they can delegate. Ask how we can make their experience as smooth as possible and what they need | |
Lone | 5.5% | One on one support, use simple terms, provide resources for support and respite care |
Responses at level 2 and higher demonstrate fluidity of knowledge skills in addition to goal complexity and mastery.