Table 2.
Family Burden Item Endorsements Over Time
| Scale Item | Baseline | 6-Months | 12-Months | 18-Months | 24-Months |
|---|---|---|---|---|---|
| 1. Financial Problems | 73% (172) | 59% (98) | 45% (54) | 47% (52) | 43% (39) |
| 2. Missed work/school | 64% (132) | 33% (47) | 30% (31) | 31% (31) | 16% (12) |
| 3. Difficulty concentrating | 83% (201) | 65% (109) | 60% (74) | 58% (66) | 53% (48) |
| 4. Change personal plans | 63% (148) | 48% (77) | 32% (39) | 29% (32) | 32% (28) |
| 5. Reduced leisure time | 72% (173) | 53% (88) | 44% (54) | 41% (46) | 35% (32) |
| 6. Upset household routine | 78% (188) | 62% (104) | 52% (62) | 51% (57) | 42% (38) |
| 7. Less time for friends | 65% (156) | 42% (69) | 35% (42) | 28% (31) | 29% (26) |
| 8. Neglected family’s needs | 61% (147) | 40% (67) | 37% (45) | 33% (36) | 29% (26) |
| 9. Family Frictions | 68% (166) | 59% (99) | 49% (60) | 54% (61) | 41% (37) |
| 10. Frictions with others | 40% (97) | 24% (40) | 23% (27) | 21% (24) | 19% (17) |
| 11. Embarrassed | 43% (105) | 31% (51) | 33% (40) | 27% (31) | 30% (27) |
| 12. Guilty not helping enough | 73% (178) | 52% (86) | 49% (60) | 50% (56) | 48% (44) |
| 13. Guilty for causing illness | 49% (118) | 38% (63) | 31% (38) | 28% (32) | 26% (23) |
| 14. Resented demands | 37% (89) | 29% (49) | 32% (39) | 27% (31) | 30% (27) |
| 15. Felt trapped | 50% (120) | 48% (80) | 45% (55) | 38% (43) | 37% (33) |
| 16. Upset about relative’s change | 78% (189) | 57% (93) | 59% (71) | 54% (48) | 54% (48) |
| 17. Worry make illness worse | 73% (175) | 66% (109) | 59% (73) | 57% (64) | 51% (46) |
| 18. Worry about future | 97% (236) | 93% (156) | 91% (112) | 88% (100) | 84% (76) |
| 19. Stigma upsetting | 70% (169) | 60% (97) | 54% (66) | 53% (59) | 42% (37) |
Note: Percentages reflect the proportion of the valid sample at each wave who reported any burden (i.e., “little” “some” or “a lot”) and parentheses report the accompanying frequency.