Skip to main content
. Author manuscript; available in PMC: 2020 May 29.
Published in final edited form as: Dementia (London). 2018 Nov 29;19(6):1955–1973. doi: 10.1177/1471301218814121

Table 3:

Care Team Navigator Psychosocial approaches to addressing caregiver self-efficacy (focus group and interviews)

Theme Sub-theme Examples of CTN Approachss
Emotional support Build social and emotional rapport • Supportive listening
• Consistent contact through monthly or more frequent phone calls
• Provide genuine acknowledgment of the caregiver’s strengths and skills (e.g. they are organized, caring, have strong advocacy skills)
Help caregiver take care of own emotional and physical health and wellbeing • Foster the idea that protection of the caregiver’s health is vital
• Reinforce the idea that self-identity does not have to be only as a caregiver (e.g. connect to a social club to foster friendship and social network, connect to past activities such as kayaking, yoga)
• Coach on ways to ask for and receive help from others (e.g. friends, families)
• Refer caregivers to therapy, support groups, mindfulness classes, etc.
Informational Support Prepare caregiver to handle what is going on • Help caregiver reframe expectations about the abilities of the person with dementia
• Provide strategies to enhance communication (limit choice, simplify content, limit use of logical reasoning) with person with dementia
• Educate about the nature of dementia and the inevitability of deterioration despite good caregiving
• Educate caregiver about approaches to understanding and responding to the person with dementia’s behavior and personality changes
Prepare caregiver to handle the future • Provide book titles and information about support groups, therapists
• Address financial questions and concerns about how to pay for care and linkages to respite grants, public benefits, and elder law attorneys
• Explore all potential options for future scenarios in care delivery (e.g. home with paid care or long-term care in a facility)
• Educate about potential safety risks (falls; wandering; household hazards)
• Provide education on recognition of delirium
Instrumental Support Linkages to supportive services • Identify and facilitate respite (day programs; in-home care)
• Identify and facilitate skills training
• Referrals to community services (meal delivery; case management; technology; supplies and equipment; home safety assessments)
• Referrals to medical services (palliative care; hospice; specialty providers; primary care providers)