Table 4.

Key performance indicators (KPIs)25 and statements in the patient experience survey aligned with the corresponding themes identified through the patient and community engagement research (PaCERs) study

Themes identified during the PaCERs study	KPIsa	Statements in the patient experience survey
1. Initial access to rheumatology care	KPI 2: Time from RA referral receipt to referral completion for initially incomplete referrals KPI 6: Waiting times for rheumatologist consultation for patients with new‐onset rheumatoid arthritis KPI 7: Time to disease‐modifying antirheumatic drug therapy for patients with new‐onset RA KPI 8: Percentage of patients with new‐onset RA with at least one visit to a rheumatologist in the first year of diagnosis KPI 23: Patient experience with centralized intake	Care for my rheumatoid arthritis started quickly after the referral to the rheumatology clinic The referral from my family doctor to the rheumatology clinic was dealt with in a timely manner It was difficult to reach the care providers at the rheumatology clinic
2. On‐going access to rheumatology care	KPI 17: Waiting times for patients with established RA conditions KPI 18: Percentage of patients living with RA treated with a disease‐modifying antirheumatic drug during the measurement year KPI 23: Patient experience with centralized intake	The care providers at the rheumatology clinic explained to me what to do if my rheumatoid arthritis gets worse
3. Information about RA and resources for those living with RA	KPI 11: Percentage of patients who receive information regarding resources and tools available for management while waiting for first musculoskeletal specialty contact KPI 23: Patient experience with centralized intake	The care providers at the rheumatology clinic responded to all my questions or concerns in a way I could understand I received information on other options to manage my rheumatoid arthritis (eg, physiotherapy, acupuncture, chiropractor, nonmedical wellness strategies) The care providers at the rheumatology clinic gave me information on how to self‐manage my rheumatoid arthritis The information I received on peer support groups for rheumatoid arthritis was useful
4. Fear of the future	KPI 23: Patient experience with centralized intake	The care providers at the rheumatology clinic explained the proposed treatment plan to me in a way I could understand Before my treatment for rheumatoid arthritis, all the risks and/or benefits were explained to me in a way I could understand The care providers at the rheumatology clinic explained the reasons for all the tests in a way I could understand The care providers at the rheumatology clinic explained my test results to me in a way I could understand The purpose of the medications that were prescribed for rheumatoid arthritis was explained to me in a way I could understand The information I received about rheumatoid arthritis was clear
5. Collaborative and continuous care	KPI 23: Patient experience with centralized intake	The care providers at the rheumatology clinic knew important information about my medical history My family doctor is informed and up‐to‐date about the care I receive at the rheumatology clinic My care was well‐coordinated among different care providers at the rheumatology clinic I received consistent messages from all of the different care providers at the rheumatology clinic

^aThe KPIs in the table refer to the numbering in the manuscript describing the process of the development of KPIs.25