| In the past 7 days… | |||||
|---|---|---|---|---|---|
| When my mother/father was in pain she/he became irritable | Never | Rarely | Sometimes | Often | Always |
| (2) | (3) | (4) | (5) | (6) | |
| When my mother/father was in pain she/he grimaced | Never | Rarely | Sometimes | Often | Always |
| (2) | (3) | (4) | (5) | (6) | |
| When my mother/father was in pain she/he moved extremely slowly | Never | Rarely | Sometimes | Often | Always |
| (2) | (3) | (4) | (5) | (6) | |
| When my mother/father was in pain she/he moved stiffly | Never | Rarely | Sometimes | Often | Always |
| (2) | (3) | (4) | (5) | (6) | |
| When my mother/father was in pain she/he called out for someone to help her/him | Never | Rarely | Sometimes | Often | Always |
| (2) | (3) | (4) | (5) | (6) | |
| When my mother/father was in pain she/he isolated herself/himself from others | Never | Rarely | Sometimes | Often | Always |
| (2) | (3) | (4) | (5) | (6) | |
| When my mother/father was in pain she/he thrashed (tossed and turned**) | Never | Rarely | Sometimes | Often | Always |
| (2) | (3) | (4) | (5) | (6) |
Notes. *If child selects no, discontinue measure. “Had no Pain” equals 1 point for each item, so the child is then assigned a score of 7 for the measure sum score.
** “Tossed and turned” did not appear in the original administered measure, but has been added as an alternative definition based on participant feedback.
Measure adapted from the PROMIS Pain Behavior–Short Form accessible online through the PROMIS Assessment Center. As modified, this measure, Parent Pain Behavior Proxy, is not an official PROMIS measure.