Table 1.
Recommendations | Example survey items |
---|---|
Patient needs right knowledge: • Has to be comprehensive, detailed, and no-nonsense. • Knowledge on disease progression, and corresponding evidence-based management strategies • Information on when should we seek help and from whom • What can the patient do when something no longer works. |
• The care providers at the clinic explained the proposed treatment plan to me in a way I could understand • The care providers at the clinic responded to all my questions or concerns in a way I could understand • The providers at the clinic explained to me what to do if my arthritis gets worse |
Patient needs right professional support: • Access to publicly funded evidence-based resources • Toolbox of disease management strategies at primary care level • Access to OA and RA expertise |
• I received information on other options to manage my arthritis (e.g. physiotherapy, acupuncture, chiropractor, non-medical wellness strategies) • It was difficult to reach the care providers at the clinic |
Right relationship between patients and care providers: • Able to come back to someone who knows patients to assist to effectively self-manage • Remember patients as individuals • Remember patient’s previous visits • Personalized and evolving self-management plan embedding patient choices |
• The care providers at the rheumatology clinic respected my wishes and ideas about my treatment • The care providers made efforts to understand what having arthritis means to me • My care was well-coordinated among different care providers at the rheumatology clinic |
aRecommendations from the report for each of the three themes (Miller et al. 2016) [7]