Table 1.
Demographic information for participants with Cornelia de Lange and fragile X syndromes at T1, T2 and T3
| CdLS | FXS | t/U/χ2 | p value | ||
|---|---|---|---|---|---|
| Time 1 | |||||
| n | 44 | 95 | |||
| Gender | % male | 36.4 | 100.0 | 75.70 | < 0.001 |
| Age (years) | Mean (SD) range | 18.39 (10.04) 4.02–40.75 | 17.29 (9.14) 6.61–47.49 | 1952.00 | ns |
| T1 Self-help skills | % partly able/able | 50.0 | 87.4 | 22.73 | < 0.001 |
| T1 SCQa total score | Mean (SD) | 20.14 (6.22) | 20.19 (6.11) | .086 | ns |
| T2 Self-help skills | % partly able/able | 45.9 | 87.7 | 29.86 | < 0.001 |
| T2 SCQ total score | Mean (SD) | 20.26 (6.08) | 20.12 (6.64) | .240 | ns |
| T3 Self-help skills | % partly able/able | 52.3 | 92.6 | 30.45 | < 0.001 |
| T3 SCQ total score | Mean (SD) | 17.30 (4.60) | 18.44 (6.08) | −.930 | ns |
n may vary due to missing data; ns = not significant
aThe Autism Screening Questionnaire (ASQ [31]) was used at T1 and T2 as the SCQ was not available. The ASQ and SCQ differ on one item (item 20: social chat) and so for consistency this item was treated as missing data and was prorated for nonverbal participants (see [27])