Table 2. The rare disease drugs which are reimbursed by local government.
| Province/City | The Rare Diseases Involved | Main Policy |
|---|---|---|
| Qingdao (39) |
Multiple sclerosis: Recombinant human interferon for injection (β-1b); Hyperphenylalanemia: Sapropterin Dihydrochloride Tablets; Idiopathic Pulmonary Artery Hypertension: Bosentan Tablets; Gaucher disease: Imiglucerase for Injection; |
▪) Supplementary Medical Insurance Funds reimbursed 80%. ▪) Large amount of security section, personal burden of more than 50,000 yuan/year, reimbursed 70%, annual maximum payment was 200,000 yuan. ▪) Insured people in low-and middle-income families can also enjoy the special medical subsidy provided by the civil administration. |
| Shanghai (40) |
Haemophilia: Recombinant Human Coagulation Factor Ⅸ for Injection. Children's Hospitalization Fund: Pompeii Disease, Fabre Disease, Gaucher Disease, Mucopolysaccharidosis; Special Rescue Funds for Lysosomal Storage: Diseases Associated with Lysosomal Storage. |
▪) Children's Hospitalization Funds reimbursed RMB10,000 (children only). ▪) Special Rescue Funds for Lysosomal Storage provide relief for the remaining co-payments of patients. |
| Zhejiang (41) |
Gaucher Disease: Imiglucerase for Injection; Hyperphenylalanemia: Sapropterin Dihydrochloride Tablets; Idiopathic Pulmonary Fibrosis: Nintedanib; Idiopathic Pulmonary Artery Hypertension: Ambrisentan tablets; Amyotrophic Lateral Sclerosis: Riluzole. |
▪) Medical expenses other than medicare reimbursement were resolved by financial arrangement funds through special assistance. ▪) Special funds were subsidized by provincial finance through civil assistance |
| Henan (42) | Haemophilia, Phenylketonuria etc. | ▪) Included in the list of severe diseases |
| Shenzhen (43) |
Idiopathic Pulmonary Arterial Hypertension: Bosentan Tablets; Crohn's Disease: Infliximab for Injection. |
▪) Included in the supplementary medical insurance list, reimburse 70% |
| Chengdu (44) |
Idiopathic Pulmonary Arterial Hypertension: Bosentan Tablets; Crohn's Disease: Infliximab for Injection |
▪) Included in the medical insurance drug list for severe diseases, reimburse 70% and the limitation is 150,000 yuan at most. |