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. 2019 Jun 10;2:51. doi: 10.1038/s41746-019-0124-y

Table 3.

Examples of the different categories of post

Source Seems friendly Shows tension release Agrees Asks for suggestion Asks for opinion Asks for information Gives information Gives opinion Gives suggestion Disagrees Shows tension Seems unfriendly
Twitter #LCSM and #LungCancer

‘I’m so saddened & disappointed. My condolences to her loving family & the lung cancer community’

‘Thanks everyone who walked today’

‘US #1 cancer killer is Lung Cancer: 433 die daily,160 K die yearly! Lungs are sexy, too!’ ‘Agreed! Either light up the White House for every cancer or don’t light it up at all! #WhyIsThisPink’ ‘How might doctors and other healthcare providers better integrate #yogatherapy into their offerings?’ ‘Which lung cancer group(s) do you favour? Why do you like them?’ ‘Which Genetic Tests Are Important for Metastatic Lung Cancer Treatment?’ ‘#BreakingNews: FDA approves new dosing option for ALUNBRIG (brigatinib) in the US’ ‘Let’s not forget that #lungcancer takes more lives than the next four cancers put together. More research clearly needed’ ‘For those who’ve lost someone to lung cancer. Join me at the Life & Breath Rally.’ ‘This seems wrong’

‘Damn it! xxx died’

‘This f*kin’ sucks. She so wanted to be in Oahu with her family. I hope she was.’

‘… there is no need to be rude. I am a cancer survivor. I don’t think I brought it on myself & I changed my career to advocate for those who feel their voices are lost…’
Facebook Lung Cancer Support Group

‘Sending love and prayers’

‘Good luck next week’

‘Nobody is getting out of here alive. Life is a 100% fatal disease.’

‘I agree with you…..hospitals are scary’

‘I totally agree. Family and friends may be supportive but they don’t understand what we’re going through and feeling like everyone on here’

‘Where and how do all of you find your inner strength? I’m so afraid. Please share what helps you.’ ‘Is there hope for Lung cancer? Need some warriors here to post some good news for a change….’ 'Does it mean that it’s not advanced NSCLC since my dad tested negative for the PD-L1?’ ‘Keytruda did not work for me because I have a ALK mutation in my cancer. I went to different oncologist and she put me on a targeted therapy for that mutation and my tumours are shrinking.’ ‘It’s awful but it gets better when the radiation stops. Just work hard on staying hydrated and eating what you can.’ ‘Take it day by day and test by test….Stay away from the internet searches and Dr. Google.’ ‘we need to STOP the Stigma and not worry about who smokes, smoked or never smoked…it causes so much upset and hard feelings because so many people still ‘assume’ that you had to smoke to get Lung Cancer’

‘SPAM!…You are in violation of the GROUP RULES!’

‘Comments like that are so ignorant’

Macmillan.org.uk lung cancer discussion forum ‘I’m so so sorry for your loss. Your mom fought and lost but she is now in a better place. I don’t know what to say other than I’m thinking of you and her. Please take care and your time to grieve.’ ‘My dad’s taste has completely changed! He’s like a pregnant woman!’ ‘My grandad has been having the sweats! Definitely agree. They should make these symptoms more aware. Especially considering how aggressive this cancer is.’ ‘My dad has advanced lung cancer. …. Does anyone have any suggestions for good support pillows that helped them or their loved ones? ‘If the 4 chemo sessions I’m going to get are only going to give me a short time extra and in that short time I’m going to feel dreadful, then what’s the point? Does that sound a bit defeatist?’ ‘Found out today that if the disease progresses they would consider second line treatments such as Docetaxel or + /− Neratinib. Has anyone any experience of these?’ ‘I am brand new and so thankful that I found your site. I went to the ER yesterday for abdominal pain and they did an abdominal CT scan. They found 2 small nodules (2 mm and 3 mm) in one of my lungs. It says 2/3, stable densities suggesting benignity.’ ‘Things will get easier when you have a treatment plan and can get your head round it and see the way forward.’

‘You can carry out a search within the Lung group typing some words into the search bar and it should list all discussions containing that text.’

‘Have you been allocated a Macmillan nurse? If not speak to the oncology department.’

‘The consultant didn’t want to put a time frame on her life expectancy … how the hell do you get through this? How do I explain to my 4 year old when the time comes that grandma isn’t coming over again?’ ‘My original post was supposed to provide my Dad with some positive stories and tips…I dont think i can share this thread with him after the last post. Im sympathetic to your situation but just ask you be the same to mine’