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. 2019 Jul;63:3–12. doi: 10.1016/j.rasd.2018.08.007

Table 1.

Surveys results regarding the use of applied measures of ASD, background information and wellbeing in research with older autistic adults.

Domain Measures Survey responses Countriesa
Nstudies = 21 UK NL USA AU
ASD traits SRS-2 15 x x x
AQ 9 x x x
SCQ 5 x x
Other1 12 x x x x
Background questions Age (birth date) 22 x x x x
Gender (birth; identity) 22 x x x x
Age of diagnosis 20 x x x x
Living situation 19 x x x
Employment status 19 x x x x
Medication use 19 x x x x
Education level 18 x x x x
Other diagnosis now or in the past 18 x x x x
Relationship status 15 x x x x
Other2 21 x x x x
Well-being/Quality of Life WHOQOL-BREF 15 x x x x
Other3 17 x x x x

Notes: SRS-2: Social Responsiveness Scale–Second Edition (Constantino & Gruber, 2012; Constantino et al., 2003).

AQ: Autism Spectrum Quotient (Baron-Cohen et al., 2001).

SCQ: Social Communication Questionnaire (Rutter et al., 2003).

WHOQOL-BREF: World Health Organisation Quality of Life assessment–Short Form (WHOQOL Group, 1998).

1

TAS-20 (Toronto Alexithymia Scale; Bagby et al., 1994); SSQ (Sensory Sensitivity Questionnaire; Minshew & Hobson, 2008); IRI (Interpersonal Reactivity Index; Davis, 1983).

2

Impact of ASD diagnosis, alcohol/drug use, diagnoses in family members, history of dementia/Alzheimer’s disease/Parkinson’s disease in family members, current motor coordination issues, social network/support system (e.g. Croen et al., 2015).

3

PWI-A (Personal Wellbeing Index–Adult version; Cummins, 2002); WEMBS (Warwick & Edinburgh Mental Well-Being Scale; Tennant et al., 2007); Quality of Life Questionnaire (Schalock & Keith, 1993).

a

Respondents were from international research groups in the following countries (cities): UK (England: Cambridge; Newcastle; London); Netherlands (Amsterdam); USA (Virginia; Arizona; North Carolina; Pennsylvania; Wisconsin; California; Georgia; Utah; Washington State; Missouri); Australia (New South Wales; Victoria).