Table 1.
Domain | Measures | Survey responses | Countriesa |
|||
---|---|---|---|---|---|---|
Nstudies = 21 | UK | NL | USA | AU | ||
ASD traits | SRS-2 | 15 | x | x | x | |
AQ | 9 | x | x | x | ||
SCQ | 5 | x | x | |||
Other1 | 12 | x | x | x | x | |
Background questions | Age (birth date) | 22 | x | x | x | x |
Gender (birth; identity) | 22 | x | x | x | x | |
Age of diagnosis | 20 | x | x | x | x | |
Living situation | 19 | x | x | x | ||
Employment status | 19 | x | x | x | x | |
Medication use | 19 | x | x | x | x | |
Education level | 18 | x | x | x | x | |
Other diagnosis now or in the past | 18 | x | x | x | x | |
Relationship status | 15 | x | x | x | x | |
Other2 | 21 | x | x | x | x | |
Well-being/Quality of Life | WHOQOL-BREF | 15 | x | x | x | x |
Other3 | 17 | x | x | x | x |
Notes: SRS-2: Social Responsiveness Scale–Second Edition (Constantino & Gruber, 2012; Constantino et al., 2003).
AQ: Autism Spectrum Quotient (Baron-Cohen et al., 2001).
SCQ: Social Communication Questionnaire (Rutter et al., 2003).
WHOQOL-BREF: World Health Organisation Quality of Life assessment–Short Form (WHOQOL Group, 1998).
TAS-20 (Toronto Alexithymia Scale; Bagby et al., 1994); SSQ (Sensory Sensitivity Questionnaire; Minshew & Hobson, 2008); IRI (Interpersonal Reactivity Index; Davis, 1983).
Impact of ASD diagnosis, alcohol/drug use, diagnoses in family members, history of dementia/Alzheimer’s disease/Parkinson’s disease in family members, current motor coordination issues, social network/support system (e.g. Croen et al., 2015).
PWI-A (Personal Wellbeing Index–Adult version; Cummins, 2002); WEMBS (Warwick & Edinburgh Mental Well-Being Scale; Tennant et al., 2007); Quality of Life Questionnaire (Schalock & Keith, 1993).
Respondents were from international research groups in the following countries (cities): UK (England: Cambridge; Newcastle; London); Netherlands (Amsterdam); USA (Virginia; Arizona; North Carolina; Pennsylvania; Wisconsin; California; Georgia; Utah; Washington State; Missouri); Australia (New South Wales; Victoria).