Open with an introduction to self and the study, giving background and aims of the study—explain a university study, not the NHS
Tell the participant how long you expect the interview to take (between 30 min to an hour) and explain that the interview will be tape recorded
Explain about confidentiality, and the use of the data
Explain don't need to talk about anything uncomfortable with and no right/wrong answers
Any questions?
|
Patient's experience
|
|
Prompts |
Symptoms—Symptom recognition and how long before went to a HCP |
Disclosing symptoms to anyone |
Diagnosis—Who/how/what/when told |
Any difficulties/anxieties |
Involved in any care/treatment decisions? |
Alone or with a partner? |
Referred for any support? (counselling needs, QoL, psych treatment) |
IF HPV mentioned: |
What was talked about |
How did you feel |
IF HPV NOT mentioned: |
Did the health professional mention HPV at all? |
If so, how did you feel |
Psychosocial—Initial feelings |
Disclosure to partner/others |
Reactions of partner/others |
Adjustments/coping/impact on daily life (physical, psychological, social) |
Anything to help you cope better? |
Changes to relationship? |
Effect on others |
Feelings about the future |
Information needs—any research prior to diagnosis |
Amount of information received |
Lacking any information? |
Look elsewhere for information? If so, where, what helpful/unhelpful |
Were you given any written information? Need for it? |
Closing the interview
|
Any other comments, issues or suggestions that haven't been raised?
Thank interviewee
Reassure about confidentiality
Give debrief, repeating the aims of the study and leaving details of available support
Ask if happy to be re‐contacted later in the study
|