Table 4.

Quotes illustrating theme 2

Quote	Patients’ and carers’ follow-up experiences
16	Well I mean, I’m a bit surprised that the GP hasn’t been to see her. (Carer 01)
17	I don’t feel the GP’s that interested. (Carer 16)
18	I did, I prompted it. So how did you prompt it, what happened? Alright, I… I told the GP that she needs this test. (Carer 06)
19	No, that was me … [raised wife’s memory after unrelated GP visit] That was a good while ago and he’s never mentioned anything since. (Carer 20)
20	I’d asked his GP if he could have a psychiatric assessment and they sent round a CPN and she chatted to him and she said to me ‘oh yes, he has got dementia’, she said ‘I’m not quite sure what type, I’ll discuss it with the team’ because the consultant was away at that time ‘and we’ll let you know’. Well she never did get back to me. (Carer 16)
21	so why is it not dealt with in the hospital when they’re actually there, and they can see there’s a problem. (Carer 02)
22	I think it works well, like I said, it works well too that I’ve kind of got a bit of my life back…it definitely helps having carers three times a day. (Carer 02)
23	We could not have managed without it. We were getting desperate—we could not manage, we couldn’t be there for long enough. (Carer 14)
24	It’s not care, they just come in, write a bit in her folder and that is it, that is not care, they do not look after my mum. (Carer 05)
25	they come at so weird times. I mean, for instance, the other Sunday night they came at twenty past five to put her to bed. Have you ever heard of anything so stupid! (Carer 01)