Table 3.
Potential risks reported by patients regarding the use of BMDs and AI in their care (n = 964)
| Category and examples of patient’s quote | % of patients eliciting the idea (Raw) | % of patients eliciting the idea (Weighted) |
|---|---|---|
|
Accessibility issues “The internet network outside of major urban centers is lacking. Remote monitoring and data transmission require inconceivable speeds and uninterrupted power not possible in rural areas. The result will be a growing medical divide between those in cities and others” (71-year-old man with prostate cancer) |
3 | 3 |
|
Negatively impacting patients’ health behaviors “[I fear that some patients] will feel self-sufficient and neglect their real medical follow-up” (31-year-old woman with hypothyroidism) |
7 | 7 |
|
Impairing patient-caregiver relationships/Automation complacency “[I fear that caregivers will] rely too much on technology although it is not adapted in some situations. They will believe less [in] patients’ words and think that technology is superior evidence.” (51-year-old woman with high blood pressure) |
6 | 6 |
|
Replacing the human in care is unwanted “Nothing beats a ‘human’ opinion to better take into account patients' feelings about their illness.” (31-year-old woman with a Hashimoto’s thyroiditis) |
33 | 28 |
|
Reliability issues “Making people dependent on technology that require very complex infrastructures (networks, datacenters, sophisticated objects, etc.) … which are often fragile and prone to failure” (37-year-old man with chronic fatigue syndrome) |
13 | 15 |
|
Risk of hacking “risks of hacking, risk of fraudulent use of medical data” (66-year-old man with chronic ulcerative colitis) |
20 | 13 |
|
Intruding in patients’ lives “What is the real use of the data? Can I have a right of access to certain data that I wish to keep confidential (sexual orientation...)?” (45-year-old man with chronic heart failure) |
9 | 7 |
|
Increasing the risk of data misuse “Unwanted access to personal data to people not subject to medical confidentiality, eg, insurance, bank, employers....” (69-year-old woman with Crohn’s disease) |
19 | 14 |
|
Technology will require an overhaul of the care system “This implies that professionals will need to be ready and able to provide a real follow-up after [alerts from BMDs], and that they know how to react according to the information.” (30-year-old man with vitiligo) |
1 | 1 |
Categories presented were defined by thematic analysis of patients’ open-ended answers