Table 1.
Sample description (n = 8961). Participants willing, unwilling and unsure about donating DNA and/or medical information to research (including to medical doctors, non-profit and for-profit researchers) associated with familiarity about genetics and demographic variables. P-values for χ2 tests (excluding missing data) are shown.
| Variable | Categories | Total (n = 8961) |
Willing (n = 6073) |
Unwilling (n = 1426) |
Unsure (n = 1462) |
P | ||||
|---|---|---|---|---|---|---|---|---|---|---|
| N | % | N | % | N | % | N | % | |||
| Genetics knowledge | Unfamiliar | 5004 | 55.8 | 3036 | 50 | 918 | 64.4 | 1050 | 71.8 | <0.0001 |
| Familiar | 2786 | 31.1 | 2052 | 33.8 | 407 | 28.5 | 327 | 22.4 | ||
| Personal | 1170 | 13.1 | 985 | 16.2 | 100 | 7 | 85 | 5.8 | ||
| Missing | 1 | 0 | 0 | 0 | 1 | 0.1 | 0 | 0 | ||
| Age | 30 and under | 2090 | 23.3 | 1493 | 24.6 | 270 | 18.9 | 327 | 22.4 | <0.0001 |
| 31–40 | 2046 | 22.8 | 1406 | 23.2 | 310 | 21.7 | 330 | 22.6 | ||
| 41–50 | 1569 | 17.5 | 988 | 16.3 | 272 | 19.1 | 309 | 21.1 | ||
| 51–60 | 1588 | 17.7 | 1011 | 16.6 | 297 | 20.8 | 280 | 19.2 | ||
| Over 60 | 1664 | 18.6 | 1172 | 19.3 | 277 | 19.4 | 215 | 14.7 | ||
| Missing | 4 | 0 | 3 | 0 | 0 | 0 | 1 | 0.1 | ||
| Gender | Female | 4328 | 48.3 | 2895 | 47.7 | 631 | 44.2 | 802 | 54.9 | <0.0001 |
| Male | 4573 | 51 | 3154 | 51.9 | 780 | 54.7 | 639 | 43.7 | ||
| Missing | 60 | 0.7 | 24 | 0.4 | 15 | 1.1 | 21 | 1.4 | ||
| Children | No | 3695 | 41.2 | 2445 | 40.3 | 641 | 45 | 609 | 41.7 | 0.001 |
| Yes | 5111 | 57 | 3556 | 58.6 | 743 | 52.1 | 812 | 55.5 | ||
| Missing | 155 | 1.7 | 72 | 1.2 | 42 | 2.9 | 41 | 2.8 | ||
| Education | Tertiary | 5172 | 57.7 | 3664 | 60.3 | 759 | 53.2 | 749 | 51.2 | <0.0001 |
| Secondary | 3009 | 33.6 | 1943 | 32 | 520 | 36.5 | 546 | 37.3 | ||
| Primary | 551 | 6.1 | 331 | 5.5 | 103 | 7.2 | 117 | 8 | ||
| Other | 224 | 2.5 | 131 | 2.2 | 44 | 3.1 | 49 | 3.4 | ||
| Missing | 5 | 0.1 | 4 | 0.1 | 0 | 0 | 1 | 0.1 | ||
| Country | United Kingdom | 3316 | 37 | 2257 | 37.2 | 486 | 34.1 | 573 | 39.2 | 0.006 |
| United States | 1992 | 22.2 | 1366 | 22.5 | 334 | 23.4 | 292 | 20 | ||
| Canada | 2251 | 25.1 | 1544 | 25.4 | 349 | 24.5 | 358 | 24.5 | ||
| Australia | 1402 | 15.6 | 906 | 14.9 | 257 | 18 | 239 | 16.3 | ||
| Ethnicity | Afro-European, African American, Black | 322 | 3.6 | 211 | 3.5 | 56 | 3.9 | 55 | 3.8 | 0.088 |
| Asian | 660 | 7.4 | 422 | 6.9 | 117 | 8.2 | 121 | 8.3 | ||
| Hispanic | 139 | 1.6 | 85 | 1.4 | 27 | 1.9 | 27 | 1.8 | ||
| Other | 193 | 2.2 | 121 | 2 | 36 | 2.5 | 36 | 2.5 | ||
| White | 7538 | 84.1 | 5186 | 85.4 | 1150 | 80.6 | 1202 | 82.2 | ||
| Missing | 109 | 1.2 | 48 | 0.8 | 40 | 2.8 | 21 | 1.4 | ||
| Religiosity | Not a religious person | 5608 | 62.6 | 3695 | 60.8 | 923 | 64.7 | 990 | 67.7 | <0.0001 |
| A religious person | 3348 | 37.4 | 2374 | 39.1 | 503 | 35.3 | 471 | 32.2 | ||
| Missing | 5 | 0.1 | 4 | 0.1 | 0 | 0 | 1 | 0.1 | ||
| Relationship | Married/civil partnership/living together | 5564 | 62.1 | 3847 | 63.3 | 829 | 58.1 | 888 | 60.7 | 0.001 |
| Divorced/Single/Widowed | 3392 | 37.9 | 2222 | 36.6 | 597 | 41.9 | 573 | 39.2 | ||
| Missing | 5 | 0.1 | 4 | 0.1 | 0 | 0 | 1 | 0.1 | ||