Table 2.
Study | Design/MMAT Rating | Setting/Country/Year | Intervention | Service users/ diagnosis | Workers/ profession |
---|---|---|---|---|---|
Anttila, Koivunen [42] | Qualitative description: worker questionnaires after 12 months using intervention 2/4 | Two inpatient psychiatric hospitals, Norway, 2005-2006 |
Mieli.Net WB: patient education portal to support SM. Includes information, peer and staff support channels. Nurses used portal to deliver 6 education sessions over 1 month. SU continued access post discharge. |
n = undisclosed Available to inpatients diagnosed with schizophrenia |
n = 56 psychiatric nurses participating in study |
Koivunen, Huhtasalo [43] | Qualitative description: worker FGs and 1:1 IVs after providing systematic IT education 2/4 | n = 30 (subset of above). 14 nurses provided IT based education and 16 provided conventional education | |||
de Leeuw, van Splunteren [44] |
Mixed methodsa Single group pilot study: qualitative results only. SU and worker open-ended questions at BL and after 9 months; and FGs at 15 months. 0/4 |
Two MH organizations, Netherlands, 2009-2011 |
Personal Control in Rehabilitation (PCR) WB: SM & communication portals including information, SM, communication tools. SU could authorize worker and carer access. |
n = 19 (FG participants); 100% schizophrenia or first episode psychosis; 74% male; aged16-66 years |
n = 36 15 nurses, 8 psychiatric nurses, 4 SW, 3 psychologists, 3 psychiatrists, 3 managers |
Forchuk, Rudnick [45] | Mixed methods, Initial analysis of data from two group, delayed intervention RCT. SU questionnaire at BL, 6, 12, 18 months and usage data. SU and worker FGs held over 18 months 0/4 | Four community MH agencies, Canada, 2012-2014 | Mental health engagement network (MHEN)WB and MDB: App with personal health record and SM tools. Smart phone provided to SU; tablet device provided to workers for both to access health record. |
n = 400 59% Psychotic disorder; 60% male; mean age 37 years |
n = 54 Nurses, SW, OT |
Forchuk, Donelle [46] | Mixed methods, SU questionnaires, and FG data as illustrative quotes 1/4 | n = 394 (same sample as above) | |||
Goscha and Rapp [47] | Qualitative description: 2 x 1:1 SU and worker IVs after 4 months intervention use 3/4 | One community MH centre, Kansas, USA 2006-2007 |
CommonGround WB: SDM program with peer content and peer support, used to create health report. Report viewed by prescriber and used in appointments to make shared decisions, final plan shared with treating team. |
n = 12 SMI: Unspecified % schizophrenia/psychotic disorders; 58% male; mean age 45 years |
n = 15 5 CM, 3 prescribers, 3 nurses, 2 PW, 2 supervisors |
Bonfils, Dreison [48] | Mixed-methods: worker 1:1 IV at end of intervention use, SU usage data, fidelity reports 2/4 | One urban community MH centre, Indiana, USA 2013-2015 |
n = 167 SMI: 67% schizophrenia diagnosis; 57% male; age not disclosed |
n = 12 supervisors, PWs, psychiatrists, managers |
|
Korsbek and Tonder [49] | Qualitative description, single group pilot study: worker FGs, SU 1:1 IVs held after using intervention 4 months 1/4 | Hospital, community MH, psychosis treatment centre, Denmark, Year not stated |
Momentum MDB and WB: SDM app, with peer support. SU used to prepare for meeting and could authorize worker access. Workers logged in to treatment site to view shared preparations. |
n = 7 of 78 participants with SMI, including schizophrenia, affective disorders; gender and age not disclosed |
n = 19 12 workers: nurses, OT, psychologist, SW; 7 doctors |
Blankers, van Emmerik [50] |
Quantitative non-randomized, two group pilot study: blended FACT (with SM focus) and conventional FACT Standardized SU questionnaires at baseline and 3 months 2/4 |
SMI community treatment centre, Netherlands, 2012-2013 |
Blended flexible assertive community treatment (Blended FACT) WB: Information and education portal, appointment scheduling and a peer forum. Skype contact with nurses. Computer, Internet and webcam provided to SU. |
n = 47 SMI including 40% schizoaffective disorder or schizophrenia; 47% male; mean age 46 years |
n = undisclosed psychiatric nurses |
Gammon, Strand [51] | Mixed-methods: single group (two sites) exploratory study. SU questionnaires BL; usage data; SU and worker FGs after using intervention 3 months; SU discussion groups and forum posts; documents 2/4 |
Multiple health services, 1 urban, and 1 rural community, Norway, 2015-2016 |
ReConnect WB: recovery-focused portal with resources and information, messaging with providers, peer support forum; workers had partial portal access. |
n = 29 Receiving MH services at least 6 months; including 10% schizophrenia-related diagnosis; 14% male; mean age 44 years |
n = 27 including 11 nurses, 5 SW, 3 physicians |
Strand, Gammon [52] | Qualitative description: SU and worker FGs early stage; 1:1 IVs and 1 dyad IV late stage 4/4 | n = 14 (subset of above) | n = 17 (subset of above) |
BL baseline, CM case manager, FG focus group, IT information technology, IV interview, MDB mobile-device based, MH mental health, OT occupational therapist, PW peer worker, RCT randomized controlled trial, SDM shared decision making, SM self-management, SMI severe mental illness, SU service user, SW social worker, WB web-based aMMAT rating for qualitative study only as no quantitative results reported