Barriers to recruitment |
Distrust – of researchers, universities or health care organizations, science and medicine at large |
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simple 1.
Establish relationship with community members prior to beginning research study and engage them in recruitment design efforts
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simple 2.
Consider engaging African American community members, including other research participants and community health care workers, as the senders/disseminators of recruitment messages
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simple 3.
Engage African American study team members as senders/disseminators of recruitment messages
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simple 4.
Provide a clear description of study purpose, procedures, who will be able to access their data and privacy safeguards in place
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simple 5.
Messages about the use of participant data should be clearly detailed
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simple 6.
Describe how information from the study may impact health care for the African American population
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simple 7.
Any and all forms of compensation should be clearly described in any study asking for participants’ time, including travel time
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Lack of Education – about research studies and genetics created less favorable attitudes about participation |
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simple 1.
Outreach efforts should focus on providing more information about genomic studies more broadly
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simple 2.
Delivering in-person education may be advantageous because researchers can address additional questions or concerns on the spot, and at the same time engage with and learn from the population
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simple 3.
Combine educational messages with messages that describe use of data and standard privacy protections that are in place
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simple 4.
Messages should provide detailed information about research purpose, processes and outcomes
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Facilitators of recruitment |
Participation – beliefs that African American participation is necessary and essential |
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simple 1.
Messages should emphasize the importance of African American participation for their community
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simple 2.
When appropriate, messages should describe any potential individual level benefit from participation in the study
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simple 3.
When appropriate, messages should describe any potential future benefit to family members
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simple 4.
When appropriate, messages should describe any potential future benefit for the African American community
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simple 5.
Messages about altruism should be included in recruitment efforts
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