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. 2019 Jun 14;10:548. doi: 10.3389/fgene.2019.00548

Table 2.

Summary of Beliefs and Attitudes and Message Design Opportunities.

Beliefs and attitudes Message design opportunities
Barriers to recruitment
Distrust – of researchers, universities or health care organizations, science and medicine at large
  • simple 1.

    Establish relationship with community members prior to beginning research study and engage them in recruitment design efforts

  • simple 2.

    Consider engaging African American community members, including other research participants and community health care workers, as the senders/disseminators of recruitment messages

  • simple 3.

    Engage African American study team members as senders/disseminators of recruitment messages

  • simple 4.

    Provide a clear description of study purpose, procedures, who will be able to access their data and privacy safeguards in place

  • simple 5.

    Messages about the use of participant data should be clearly detailed

  • simple 6.

    Describe how information from the study may impact health care for the African American population

  • simple 7.

    Any and all forms of compensation should be clearly described in any study asking for participants’ time, including travel time

Lack of Education – about research studies and genetics created less favorable attitudes about participation
  • simple 1.

    Outreach efforts should focus on providing more information about genomic studies more broadly

  • simple 2.

    Delivering in-person education may be advantageous because researchers can address additional questions or concerns on the spot, and at the same time engage with and learn from the population

  • simple 3.

    Combine educational messages with messages that describe use of data and standard privacy protections that are in place

  • simple 4.

    Messages should provide detailed information about research purpose, processes and outcomes

Facilitators of recruitment
Participation – beliefs that African American participation is necessary and essential
  • simple 1.

    Messages should emphasize the importance of African American participation for their community

  • simple 2.

    When appropriate, messages should describe any potential individual level benefit from participation in the study

  • simple 3.

    When appropriate, messages should describe any potential future benefit to family members

  • simple 4.

    When appropriate, messages should describe any potential future benefit for the African American community

  • simple 5.

    Messages about altruism should be included in recruitment efforts