Table 2.
Univariate associations with patients' satisfaction with care (n=99).
| Satisfied, n=58 (59%) | Not satisfied, n=41 (41%) | P value | Missing (n) | |
|---|---|---|---|---|
| Gender, n (%) | 0.937 | — | ||
| Men | 33 (59%) | 23 (41%) | ||
| Women | 25 (58%) | 18 (42%) | ||
| Age (years), median (q1–q3) | 79 (75–84) | 78 (73–84) | 0.357 | — |
| Age at onset (years), median (q1–q3) | 63 (57–70) | 63 (53–72) | 0.721 | — |
| PD duration (years), median (q1–q3) | 15 (12–18) | 14 (10–19) | 0.644 | — |
| Dwelling place, n (%) | 0.775 | — | ||
| Home | 37 (60%) | 25 (40%) | ||
| Nursing home | 21 (57%) | 16 (43%) | ||
| HY stage, n (%) | 0.977 | — | ||
| IV | 44 (59%) | 31 (41%) | ||
| V | 14 (58%) | 10 (42%) | ||
| Partner, n (%) | 0.631 | — | ||
| Yes | 34 (57%) | 26 (43%) | ||
| No | 24 (62%) | 15 (38%) | ||
| Professional home health care in home/nursing home, n (%) | 0.773 | — | ||
| Yes | 48 (59%) | 33 (41%) | ||
| No | 10 (56%) | 8 (44%) | ||
| Professional health-care contact | ||||
| MDS and/or PD-nurse (past year), n (%) | 0.773 | — | ||
| Yes | 38 (58%) | 28 (42%) | ||
| No | 20 (61%) | 13 (39%) | ||
| PT and/or OT and/or SLT (past 3 months), n (%) | 0.270 | — | ||
| Yes | 26 (53%) | 23 (47%) | ||
| No | 32 (64%) | 18 (36%) | ||
| Independence in ADL (Katz ADL index), median (q1–q3) | 3 (1–5) | 1 (0–4) | 0.044 | 1/1 |
| Dependent (severe functional impairment; ≤ 2), n (%) | 25 (49%) | 26 (51%) | 0.042 | |
| Clinical assessments | ||||
| Motor function (UPDRS III), median (q1–q3) | 40 (29–51) | 37 (27–52) | 0.901 | — |
| Nonmotor symptoms (NMSS), median (q1–q3) | 85 (52–121) | 92 (61–133) | 0.414 | — |
| Cognitive function (MMSE), median (q1–q3) | 23 (18–26) | 24 (19.5–28) | 0.282 | 2/- |
| Depressive symptoms (GDS–30), median (q1–q3) | 10 (6–13) | 14 (10–19) | 0.005 | 2/- |
| Depression (GDS ≥ 10), n (%) | 29 (48%) | 31 (52%) | 0.019 | |
| Health and quality of life related assessments | ||||
| Generic health status (EQ-5D), median (q1–q3) | 0.23 (0.07–0.62) | 0.15 (−0.02–0.52) | 0.062 | — |
| VAS, median (q1–q3) | 50 (35–67) | 45 (30–60) | 0.176 | 3/- |
| Individual QoL (SEIQoL-Q), median (q1–q3) | 61 (46–74) | 51 (39–62) | 0.036 | 12/7 |
| Self-rated health status (NHP), n (%) | ||||
| Emotional reactions: better/worse | 39 (59%)/13 (52%) | 27 (41%)/12 (48%) | 0.542 | 6/2 |
| Sleep: better/worse | 41 (59%)/15 (58%) | 28 (41%)/11 (42%) | 0.879 | 2/2 |
| Energy: better/worse | 23 (72%)/32 (52%) | 9 (28%)/30 (48%) | 0.062 | 3/2 |
| Pain: better/worse | 36 (62%)/19 (56%) | 22 (38%)/15 (44%) | 0.559 | 3/4 |
| Physical mobility: better/worse | 16 (62%)/40 (59%) | 10 (38%)/28 (41%) | 0.810 | 2/3 |
| Social isolation: better/worse | 46 (62%)/9 (45%) | 28 (38%)/11 (55%) | 0.171 | 3/2 |
| NHP index of distress 0–100: better/worse | 40 (61%)/12 (48%) | 26 (39%)/13 (52%) | 0.337 | 6/2 |
| Life satisfaction (LiSat-11), n (%) | ||||
| Life as a whole: high/low | 16 (76%)/38 (52%) | 5 (24%)/35 (48%) | 0.055 | 4/1 |
| Vocational situation: high/low | 6 (60%)/46 (56%) | 4 (40%)/36 (44%) | 0.814 | 7/1 |
| Financial situation: high/low | 35 (65%)/18 (46%) | 19 (35%)/21 (54%) | 0.075 | 5/1 |
| Leisure: high/low | 10 (63%)/43 (56%) | 6 (38%)/34 (44%) | 0.625 | 5/1 |
| Contacts with friends/acquaintances: high/low | 25 (63%)/28 (53%) | 15 (38%)/25 (47%) | 0.352 | 5/1 |
| Sexual life: high/low | 6 (67%)/47 (56%) | 3 (33%)/37 (44%) | 0.540 | 5/1 |
| Self-care management: high/low | 6 (86%)/47 (55%) | 1 (14%)/39 (45%) | 0.145 | 5/1 |
| Family life: high/low | 29 (64%)/24 (50%) | 16 (36%)/24 (50%) | 0.161 | 5/1 |
| Partner relationship: high/low | 25 (64%)/28 (53%) | 14 (36%)/25 (47%) | 0.282 | 5/2 |
| Somatic health: high/low | 9 (90%)/44 (53%) | 1 (10%)/39 (47%) | 0.054 | 5/1 |
| Psychological health: high/low | 22 (65%)/31 (53%) | 12 (35%)/28 (47%) | 0.256 | 5/1 |
Satisfaction with care (study-specific question), satisfied = patients reporting alternative 1 or 2 on the question satisfaction with care (score range 1–5, higher = worse; 1 = very satisfied, 2 = satisfied, 3 = neutral, 4 = unsatisfied, 5 = very unsatisfied), not satisfied = patients reporting alternative 3, 4, or 5 on the question satisfaction with care. q1–q3, first and third quartiles; HY, Hoehn and Yahr Staging Scale (score range I–V, higher = worse); MDS, movement disorder specialist contact during the past year; PD-nurse, Parkinson nurse contact during the past year; physiotherapist/occupational therapist/speech and language therapist, contact during the past three months; Katz ADL, Katz index of independence in activities of daily living (score range 0–6, higher = better); UPDRS, Unified PD Rating Scale, part III = motor examination (score range 0–108, higher = worse); NMSS, Nonmotor Symptoms Scale (0–360, higher = worse); MMSE, Mini-Mental State Examination (score range 0–30, higher = better); GDS-30, Geriatric Depression Scale (score range 0–30, higher = worse), depression = scores ≥ 10. EQ-5D-3L, EuroQol 5 Dimensions Index (score range 0–1, higher = better); VAS, visual analogue scale (score range 0–100, higher = better); SEIQoL-Q, Schedule for the Evaluation of Individual Quality of Life (score range 0–100, higher = better); NHP, the Nottingham Health Profile (score range 0–100 in each section, higher = worse; dichotomized as better = 0, worse = 1); LiSat-11, Life Satisfaction Questionnaire (each item score range 1–6, higher = better; dichotomized as not satisfied = 0, satisfied = 1). P values based on simple logistic regression analyses. Bold P values statistically significant at P < 0.05.