Table 3.
Univariate associations with informal caregivers' satisfaction with support (n=76∗).
| Satisfied, n=45 (59%) | Not satisfied, n=31 (41%) | P value | Missing (n) | |
|---|---|---|---|---|
| Patient demographics and clinical data | ||||
| Patient gender, n (%) | 0.839 | — | ||
| Men | 28 (58%) | 20 (42%) | ||
| Women | 17 (61%) | 11 (39%) | ||
| Patient age, median (q1–q3) | 80 (76–85) | 75 (71–80) | 0.009 | — |
| Patient dwelling place, n (%) | 0.054 | — | ||
| Home | 25 (51%) | 24 (49%) | ||
| Nursing home | 20 (74%)∗∗ | 7 (26%) | ||
| HY stage, n (%) | 0.004 | — | ||
| IV | 27 (48%) | 29 (52%)∗∗∗ | ||
| V | 18 (90%)∗∗∗∗ | 2 (10%) | ||
| Patient has professional home health care in home/nursing home, n (%) | 0.251 | — | ||
| Yes | 37 (63%) | 22 (37%) | ||
| No | 8 (47%) | 9 (53%) | ||
| Professional health-care contact | ||||
| MDS and/or PD-nurse (past year), n (%) | 0.086 | — | ||
| Yes | 23 (51%) | 22 (49%) | ||
| No | 22 (71%) | 9 (29%) | ||
| PT and/or OT and/or SLT (past 3 months), n (%) | 0.828 | — | ||
| Yes | 20 (61%) | 13 (39%) | — | |
| No | 25 (58%) | 18 (42%) | — | |
| Patient independence in ADL (Katz ADL index), median (q1–q3) | 2 (1–5) | 1.5 (0.75–4) | 0.449 | 1/1 |
| Dependent (severe functional impairment; ≤2), n (%) | 23 (56%) | 18 (44%) | 0.512 | |
| Patient clinical assessments | ||||
| Motor function (UPDRS III), median (q1–q3) | 41 (33–57) | 33 (26–42) | 0.015 | — |
| Nonmotor symptoms (NMSS), median (q1–q3) | 100 (49–138) | 105 (61–139) | 0.831 | 2/- |
| Cognitive function (MMSE), median (q1–q3) | 21 (18–25) | 22 (19–26) | 0.223 | 4/- |
| Depressive symptoms (GDS–30), median (q1–q3) | 11 (8–15) | 12 (8–19) | 0.328 | 6/1 |
| Depression (GDS ≥ 10), n (%) | 25 (56%) | 20 (44%) | 0.825 | |
| Patient health and quality of life related assessments | ||||
| Generic health status (EQ–5D), median (q1–q3) | 0.19 (0.08–0.52) | 0.39 (0.07–0.62) | 0.118 | 3/1 |
| VAS, median (q1–q3) | 50 (40–60) | 50 (30–60) | 0.743 | 6/2 |
| Individual QoL (SEIQoL), median (q1–q3) | 0.57 (0.41–0.75) | 0.55 (0.51–0.62) | 0.623 | 15/6 |
| Life satisfaction (LiSat-11), median (q1–q3) | ||||
| Life as a whole, n (%) | 0.589 | 7/1 | ||
| Satisfied | 17 (55%) | 14 (45%) | ||
| Not satisfied | 15 (52%) | 14 (48%) | ||
| Patient satisfaction with care, n (%) | 0.142 | 5/1 | ||
| Satisfied | 27 (64%) | 15 (36%) | ||
| Not satisfied | 13 (46%) | 15 (54%) | ||
| Caregiver quality of life | ||||
| ACQLI total score, median (q1–q3) | 7 (3–12) | 13 (7–19) | 0.036 | 2/1 |
Satisfaction with support (study-specific question), satisfied = informal caregivers reporting alternative 1 or 2 on the question satisfaction with care (score range 1–5, higher = worse; 1 = very satisfied, 2 = satisfied, 3 = neutral, 4 = unsatisfied, 5 = very unsatisfied), not satisfied = informal caregivers reporting alternative 3, 4, or 5 on the question satisfaction with care. q1–q3, first and third quartiles; HY, Hoehn and Yahr Staging Scale (score range I–V, higher = worse); MDS, movement disorder specialist contact during the past year; PD-nurse, Parkinson nurse contact during the past year; physiotherapist/occupational therapist/speech and language therapist, contact during the past three months; Katz ADL, Katz index of independence in activities of daily living (score range 0–6, higher = better); UPDRS, Unified PD Rating Scale, part III = motor examination (score range 0–108, higher = worse); NMSS, Nonmotor Symptoms Scale (0–360, higher = worse); MMSE, Mini-Mental State Examination (score range 0–30, higher = better); GDS-30, Geriatric Depression Scale (score range 0–30, higher = worse), depression = scores ≥ 10. EQ-5D-3L, EuroQol 5 Dimensions Index (score range 0–1, higher = better); VAS, visual analogue scale (score range 0–100, higher = better); SEIQoL-Q, Schedule for the Evaluation of Individual Quality of Life index (score range 0–100, higher = better); LiSat-11, Life Satisfaction Questionnaire (item 1, score range 1–6; dichotomized as not satisfied = 0, satisfied = 1) ACQLI, Alzheimer's Carer's Quality of Life Inventory (score range 0–30, higher = worse). ∗30 missing (primarily due to nonapplicable). ∗∗HY IV n=10, HY V n=10; ∗∗∗6 (21%) of the patients living in nursing home; ∗∗∗∗10 (56%) of the patients living in nursing home. P values based on simple logistic regression analyses. Bold P values statistically significant at P < 0.05.