Table 1.
Final TIP-RFT assessment domain | Draft TIP-RFT assessment domain | No. items | Example assessment item | Response categories | Source of assessment |
---|---|---|---|---|---|
Healthcare knowledge and skills | Healthcare knowledge and skills | 18 | I know what my hemoglobin type is (eg, SS, SC, sickle thalassemia) | Yes/no | Team members |
I know why drinking a lot of fluid is important to management of SCD | Yes/no | Team members | |||
Education and vocation planning | Educational/vocational skills | 11 | I have a 504 or an IEP | Yes/no/not applicable | Team members |
I know the types of work situations that could cause problems related to SCD | Yes/no | Team members | |||
Social support skill set | Social support | 9 | I have friends that I can talk to about SCD | Yes/no | Team members |
I know about community-based sickle cell programs (in my area) | Yes/no | Team members | |||
Independent living skills | Independent living skills | 10 | I know how to manage money and pay a bill | Yes/no | Children’s Hospital, Boston Transitions Initiativea |
I know how to get my prescription medications filled | Yes/no | Children’s Hospital, Boston Transitions Initiative | |||
I know how to make my own doctor’s appointments | Yes/no | Children’s Hospital, Boston Transitions Initiative | |||
Health benefits skills | 6 | I carry my own copy of my health insurance card | Yes/no | Team members | |
I have, or am working on, a portable medical history form | Yes/no | Team members |
IEP, individualized education plan; SCD, sickle cell disease; TIP-RFT, Transition Intervention Program-Readiness for Transition.