Table 4.

Focus group theme – Views on Biospecimen Collection

Sub-theme	Exemplary quote
Access to biospecimen collection results	“… if somebody did get a sample done and stuff like that, I think if they asked, they should be able to get a copy of what the report looked like.”
Getting biospecimen collection results back	“Just getting the results back to them that would make them--that would make a big difference. I mean, ‘Oh, you’ll get the results in two weeks.’ A month, a year, two years, three years go by and we are like, ‘Why did we even bother?’ That’s the stigma between what was done in the past, growing up, versus now. How fast can you get me my results after I give you a spit and hair sample, a swab? Granted, we all know it’s going to take a week to get your blood work back from here, sometimes ten days, depending on if the plane makes it. But it’s just getting the results back.” *Author Note: This comment was in reference not only to biospecimen collected for research but also for clinical diagnostic purposes.
	“I think it’s all good, but I’d like to see results in writing, in print or however you want to say it. I think the studies should have been done ten years ago. I have seen--I used to work with elders, and not being a health--I mean, not being a doctor or nurse, I would look at someone, and they would be sent back and forth to Anchorage for all the pain they had, and they would tell me, “They told me it was in my head.” And I just looked at them, and I was--I just, in my heart, I knew they have cancer. Just seeing them, the way they looked, how thin and pale, and they were in pain, and then it turns out they die a couple of months later.”