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. 2019 Jan 30;10(3):435–446. doi: 10.1007/s12687-019-00408-9

Table 5.

Focus group theme – Views on Collection of Family Health History

Sub-theme Exemplary quote
Sharing family health history “… in the future if I should have any grandchildren, they would say, “Okay, this is from grandma’s father’s side, grandma’s mother’s side.” What were--what issues did they have in the family back then? And that way we would know--they may be someone that’s interested in their health concerns like a lot of us”.
Medical records “… our identity is in the records, our names, numbers, and our information … .who has access to it, who is going to look at them, and what are you getting out of it, what are you looking for.”
“… in the history of my family, I have lost loved ones with cancer. So it kind of rings a little bell … a warning sign for me at this age. I consider myself still young but concerns, yes. I would feel comfortable if they did have to go through the whole history of my life just to find out [if I am at risk of cancer].”
Contacting family members to collect family health history “I am pretty sure people would be more willing to share family history, as long as the people you are asking from, like from me, it’s kept confidential and it really does hit a hard note with cancer patients and people that died of cancer.”.