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. Author manuscript; available in PMC: 2020 Apr 1.
Published in final edited form as: J Autism Dev Disord. 2019 Apr;49(4):1455–1474. doi: 10.1007/s10803-018-3834-0

Table 4.

Demographic and follow-up characteristics of the 31,220 individuals still in the community after 3 years of age who comprise the study cohort

Measure Birth Period Overall
1976–1980 1981–1985 1986–1990 1991–1995 1996–2000
No. in community after 3 years of age 5298 6393 6831 6466 6232 31,220
Baseline
 Male gender, N (%) 2778 (52.4%) 3300 (51.6%) 3450 (50.5%) 3288 (50.8%) 3193 (51.2%) 16009 (51.3%)
 Race, N (%)
  White 3956 (74.7%) 5162 (80.7%) 5928 (86.8%) 5692 (88.0%) 5056 (81.1%) 25794 (82.6%)
  Asian 24 (0.5%) 76 (1.2%) 197 (2.9%) 224 (3.5%) 314 (5.0%) 835 (2.7%)
  Black or African American 14 (0.3%) 20 (0.3%) 36 (0.5%) 102 (1.6%) 339 (5.4%) 511 (1.6%)
  Hawaiian or Pacific Islander 3 (0.1%) 8 (0.1%) 5 (0.1%) 15 (0.2%) 15 (0.2%) 46 (0.1%)
  American Indian or Alaskan Native 9 (0.2%) 12 (0.2%) 25 (0.4%) 15 (0.2%) 17 (0.3%) 78 (0.2%)
  Other 45 (0.8%) 98 (1.5%) 98 (1.4%) 163 (2.5%) 307 (4.9%) 711 (2.3%)
  Unknown or chose not to disclose 1247 (23.5%) 1017 (15.9%) 542 (7.9%) 255 (3.9%) 184 (3.0%) 3245 (10.4%)
ASDa criteria
No. met ASD-RI criteriab 69 163 294 278 252 1056
Age met ASD-RI criteria, Median (IQR) 9.7 (7.4, 14.3) 10.3 (7.2, 13.1) 8.8 (6.7, 12.0) 7.5 (5.2, 10.4) 6.7 (4.2, 9.4) 8.1 (5.7, 11.3)
No. met ASD-RN criteriac 23 55 135 146 175 533
Age met ASD-RN criteria, Median (IQR) 7.8 (5.8, 12.9) 7.7 (5.9, 10.0) 7.6 (5.2, 10.6) 6.6 (4.6, 8.8) 5.6 (3.7, 8.6) 6.9 (4.4, 9.5)
No. met ASD-C criteriad 6 14 53 65 104 242
Age met ASD-C criteria, Median (IQR) 15.3 (13.5, 16.7) 12.8 (10.1, 16.0) 10.4 (7.9, 14.1) 7.0 (4.2, 12.0) 5.4 (3.3, 8.4) 7.5 (4.3, 12.4)
Follow-up
Age at last follow-up for individuals not meeting the ASD-RI criteria
 Median (IQR) 32.9 (22.2, 36.4) 29.1 (22.4, 31.8) 25.0 (21.9, 26.7) 21.0 (19.4, 22.5) 16.3 (14.9, 17.8) 22.3 (17.6, 27.7)
 Categorized, N (%)
  3 - <6 years 306 (5.9%) 286 (4.6%) 376 (5.8%) 366 (5.9%) 399 (6.7%) 1733 (5.7%)
  6 - <10 years 202 (3.9%) 189 (3.0%) 246 (3.8%) 217 (3.5%) 257 (4.3%) 1111 (3.7%)
  10 - <15 years 154 (2.9%) 188 (3.0%) 160 (2.4%) 154 (2.5%) 911 (15.2%) 1567 (5.2%)
  15 - <21 years 435 (8.3%) 529 (8.5%) 626 (9.6%) 2345 (37.9%) 4413 (73.8%) 8348 (27.7%)
  21+ years 4132 (79.0%) 5038 (80.9%) 5129 (78.5%) 3106 (50.2%) 0 (0.0%) 17405 (57.7%)

Abbreviations: IQR, interquartile range

a

ASD: Autism spectrum disorder

b

ASD-RI: Research-defined ASD, (inclusive criteria; see Table 2)

c

ASD-RN: Research-defined ASD (subset of ASD-RI who met narrow criteria; see Table 2)

d

ASD-C: Clinically diagnosed ASD