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. 2019 Jan 21;91(5):294–300. doi: 10.5414/CN109608

Table 3. Patient perspective on prognosis, end-of-life care, and quality of life, n (%).

Question Important Unimportant Unsure/No response
How important is it for your "quality of life" to affect your future care? 347 (82) 54 (12.8) 22 (5.2)
How important is detailed information about your medical condition? 341 (80.6) 67 (15.8) 15 (3.6)
How important is it for you to be informed about your prognosis? 331 (78.3) 71 (16.8) 21 (4.9)
How important is it for you to prepare and plan ahead in case of death? 312 (73.7) 69 (16.3) 42 (9.9)
How important is it to you for your family to be actively involved in medical decision making? 318 (75.2) 88 (20.8) 17 (4)
How important is it to you to have access to information on alternative ways to manage your physical symptoms (e.g., holistic care, etc.) 317 (75.2) 61 (14.4) 44 (10.4)
How important is it for you to have your physical symptoms (e.g., pain, nausea) treated by the nephrology staff? 320 (75.7) 66 (15.6) 37 (8.7)
How important is it for you to discuss your “quality of life’’ regularly with our nephrology staff? 301 (71.1) 79 (18.7) 43 (10.2)
How important is it for you to be informed about treatment options such as withdrawing dialysis? 262 (61.9) 105 (24.8) 56 (13.3)
How important is it for you to have your social, psychological, or spiritual concerns attended to by nephrology staff? 213 (50.4) 135 (31.9) 75 (17.7)