Table 1.

The full questions and options of the questionnaire hosted online for patients

Question	Answers
How long have you had lupus and/or APS?	<5 years, 5–10 years, >10 years
How valuable do you think research to identify new blood tests to measure disease activity for lupus and APS is?	1–10
How valuable do you think it is to know if you are positive for autoantibodies that may influence your treatment?	1–10
How important do you think it is to know the effects your autoantibodies may have on your treatment?	1–10
Do you think it is important for doctors to know whether autoantibodies should influence treatment choices?	Yes/no
Would you take an anti-FXa drug if you thought it would help treat your lupus or APS?	Yes/no/if recommended by a clinician
Do you feel research like this is answering questions specific to you?	Yes/no
What research questions do you think we should investigate?	Free text

FXa: factor Xa.