Table 1:
Weekly Session Content
Week | Session Topic | Detailed Content |
---|---|---|
1 | Goal setting/ action planning | Introduction to SLE management and a chance for the mentee to get to know the mentor |
2 | Exercise | Appropriate exercise for maintaining and improving strength, flexibility, and endurance |
3 | Medication overview | Appropriate use of medications and evaluation of new treatments/ making informed decisions |
4 | Effective communication | Communicating effectively with family, friend, and health professionals |
5 | Nutrition/ healthy eating | Sessions five will stress nutrition and healthy eating |
6 | Stress relaxation techniques | Relaxation techniques to cope with chronic pain, manage sudden increases in pain and other symptoms and reduce flares |
7 | Coping | Coping, including problem solving and strategies for coping with pain, other lupus symptoms, and interpersonal issues |
8 | Body image | Body image issues, including concerns around hair loss, skin discoloration and scaring, and medication-induced weight gain |
9 | Complications | Complications (e.g. kidney disease, digestive issues, pregnancy outcomes) fatalism-fear of complications and how that impacts perception of survival, and self-efficacy |
10 | Self-monitoring | Self-monitoring and depression |
11 | Sexuality/ sexual health | Sexuality/ sexual health, including spousal interactions and dating |
12 | Trust | Perceptions of care from doctor(s), impact on adherence, seeking second opinions, perceived discrimination, and perceived cultural competence of provider(s); Review of material from all previous sections; Feedback on program, discussion of any progress made |