Table 3.
Variables, Measures and Time Points
| TIMEPOINTS | |||||
|---|---|---|---|---|---|
| Outcome Variables | Measures | Baseline | 3 months post-results disclosure | 12 Months post-results disclosure | 24 Months post-results disclosure |
| Cancer Risk Distress | Impact of Events Scale (IES) [9] | X | X | X | X |
| Decisional Satisfaction Concerns | Satisfaction with Decision (SWD)[10] | X | X | X | |
| Genetic Testing Concerns | Multidimensional Impact of Cancer Risk Assessment (MICRA) [11] | X | X | X | |
| Anxiety | Generalized Anxiety Disorder Scale (GAD-7) [12] | X | X | X | X |
| Depression | Patient Health Questionnaire (PHQ-8)[13] | X | X | X | X |
| Decisional Regret | Decision Regret Scale [14] | X | X | X | |
| Quality of Life | Veterans RAND 12-Item Survey (VR-12) [15] | X | X | X | X |
| Surveillance Behaviors | Behavioral Risk Surveillance Study Measures [16] | X | X | X | X |
| Genetics Knowledge | General Knowledge about HBOC [17] | X | X | X | X |
| Cancer Risk Distress | Demographics | X | |||